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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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You do about HIT?Hi I do not know anything about testing in the UK, but about HIT. So, just ask. Regards, misskatniss
PS: Not all of the page is in English, but much. I link the food list here below:
http://www.histaminintoleranz.ch/download/SIGHI-FoodCompatibilityList_HIT(EN).pdf
Then, regarding diagnosis, your doc should exclude other possible reasons.
If HIT is very likely, see: http://www.histaminintoleranz.ch/en/therapy.html
Yes, I do, Sporty - otherwise I wouldn´t do the research on it but simply eat chocolate...
Hi there
Does anyone on here know about histamine/histamine intolerance etc? Can you be tested in the uk for it by your gp?
Cheers
Simon
Simon, there is some good information on this forum about this. I started this thread with the same name a week or two ago.
Search for keywords like: DAO Enzyme, Luteolin, Rutin, Royal Jelly, Quercetin and Mangosteen. Those were a few things along with Vitamin C recommended to help someone with a Histamine problem.
Also search for Mast Cell Disorder. (Mast cell disorder forum: http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1294200058
Also to help diagnosis I've read it's best to try antihistamines for a week and see if you are feeling much better on them. There was a post mentioning H1, H2, H3 and H4 blockers. You would want to address as many of those as you can. H1 and H2 blockers are easily found.
Cheers
Hey @Sporty don´t get confused, ;-) it´s not as contradictory as it seems. It´s as follows, as far as I get it:
If you have a prob with histamine (there are different kinds: the one you eat in food or take through chemicals or stuff like that into your body, then the one your body itself releases inside (gut bacteria and so on do, that´s normal) and the histamine that is released in your body because you eat sth that doesn´t contain histamine but acts as a histamine liberator inside the body, thus causes your body to release histamine.
You can see in this distinction, that you can never completely avoid histamine. So both is true:
You should definitely avoid histamine in food and chemicals. And see if you get better. That might take a couple of weeks though. After two, I noticed the first remarkable differences (which is less belly probs and flatulence, less panicking, less restless legs, less headaches, less sinusitis)
.
But you can also, if symptoms stay bad, search for an antihistaminic susbstance (there are supplements as well as meds, I would be careful with meds, see below) which you tolerate, so you can help yourself if you feel too bad (but please continue avoiding intake of histamine via food!) and help yur body getting off that alarm situation. Also because, if you don´t eat histamine, your body still got its own inside, as I explained, and you can´t avoid that. And some people react more on histamine from outside, others more on the bodily one.
What I want to tell you about meds: I would definitely only take them if you feel very bad (and ask a doctor first). Because they only block histamine receptors, but the histamine still stays in your body. And some antihistaminics also release histamine themselves! I myslef do with supplements like turmeric, seasalt, water, VitC (the latter very effective in me). So, the clue stays: Start with lowering histamine in your body, and mostly via voiding it in foods etc.
A last info: To get rid of too much histamine you ate, you can take Histame / Daosin, an enzyme which actually helps reducing histamine. That doesn´t work in all of us, but I myself can report I probably have a shortage of DAO (the body produces that itself normally, I have too few, if you ask me), and therefore taking it before eating helps me.
I have been to the doc today and he checks my DAO and histamine in the lab. I´ll keep you posted if that helped
Hope this was understandable. I am very tired from the doctor´s appointment and thus not so clear in thought.
All the best, missk
Hey @Sporty this answer comes "quick and dirty" as I am strung out from the doc´s visit with aches in all my muscles and light sensitivity. You can test for histamine in the blood and for DAO, there´s nothing wrong with that, but the most reliable test imho is your elimination diet plus elimination of other sources of hsitamine intake and how you feel after that elimination. And as long as you haven´t got an allergic reaction that requires strong antihistamines, I´d go slow with meds and rely on (yes they are natural supplements first. Best wishes, Simon. Now I gotta rest again.
I haven't looked into histamine yet.@Valentijn and @Gandalf - I think you'd spoken about HNMT gene/enzyme previously, do you know what the #rsid references are to try and help me find this info in the 23andme results? And what the 'risk' values are?