emergency report from China

taniaaust1

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taniaaust1 how did u get this problem? is your problem similar to us with the hiv like infection?

Today`s doctors ie most of them are focused on profit, so if it was not taught to them, it has to be in the mind. Yes i believe only a researcher or a virologist can help me, the 3-5 weeks patient is indeed very rare if not impossible to find. But that is the key to knowing what is causing this infection
I myself didnt catch it sexually (I got sick when I was in collage but have passed it to others via saliva (one could recover and the one couldnt and remains not well).

I dont think I have the HIV like infection as it has manifested in me just like the patient group Dr Cheney is most familiar with and writes about (he was one of the drs from the big Lake Tahoe outbreak) and my illness has followed the course he describes... so I see it as typical ME as seen in outbreaks (not CFS).

The only thing like HIV i have is with my illness my white blood cell count only just stay in range (at times have been right on the very border of what is normal any lower and would be out of range). Indicates chronic infection of some kind going on (according to the Dr Sarah Myhill info).

The one thing I have which dont fit with most who have ME is .. Ive almost been out of normal range with my ESR with it being high (that has sat on border of normal range at times).. while Ive heard that most with ME have low ESR. My ESR is linked in with D somehow.. and if my D "naturally" improves some and heads up more towards normal range.. my ESR falls. (so whatever raises my ESR must lower my D or visa versa).

Ive never managed to get anyone to do a NKC function test so no idea if that is abnormal (thou I'd expect mine would be).
 

Daffodil

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Hi Tania. When you say you passed it on to others via saliva, do you mean during the acute infection when you were in college, or even years later?

thank you!
xoxo
 
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The only thing like HIV i have is with my illness my white blood cell count only just stay in range (at times have been right on the very border of what is normal any lower and would be out of range). Indicates chronic infection of some kind going on (according to the Dr Sarah Myhill info).
Are you talking about Leukopenia? That's exactly my most noticeable value on blood tests. I had it as low as 2500 per cubic millimeter, and most times marginally lower than 4000, while before I used to have about 5000.

I had Immunoferon (AM3) for two months and the symptoms became much worse. I guess that was because of the immunological system fight increased and thus my body suffered the war.

I think that the AIDS-Like virus and the Hip's virus are the same.
 
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taniaaust1

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Hi Tania. When you say you passed it on to others via saliva, do you mean during the acute infection when you were in college, or even years later?

thank you!
xoxo
Over 13 years later .. I had the first incident in which I seemed to pass it onto another.. and then several years after that, the same again.

I dont think I was dating anyone when I first got sick in my early years of this illness. I went about 10-11 years somewhere along the time I had this illness with no relationships (so not much chance of any saliva transmission going on).

There is a regular at this site who believes she's given this illness to over 20 people.. I wonder if my case would be similar if I wasnt being soo careful eg I dont share glasses, only kiss my lovers on the lips etc
 

taniaaust1

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Are you talking about Leukopenia? That's exactly my most noticeable value on blood tests. I had it as low as 2500 per cubic millimeter, and most times marginally lower than 4000, while before I used to have about 5000.

I had Immunoferon (AM3) for two months and the symptoms became much worse. I guess that was because of the immunological system fight increased and thus my body suffered the war.

I think that the AIDS-Like virus and the Hip's virus are the same.
The terms leukopenia and neutropenia may occasionally be used interchangeably, as the neutrophil count is the most important indicator of infection risk.
It was my neutrophils which were affected (borderline) so that dropped my over all white blood cell count. 7+ years it was afftected by the ME.

Ive now thou got my neutrophils back up (it doubled them) by taking lithium orotate for a year (I dont know at what point due to taking this I got them up). If you look up lithium you will see there has been various studies done showing it helps increase white blood cells