John H Wolfe
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Thanks a lot for the response, big helpI hope this helps
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thanks a lot for the response, big helpI hope this helps
I am feeling some aching in my muscles and joints and some adrenal stress (POTS and fatigue) which of course makes me totally paranoid that the NAG is exacerbating the lyme disease.
One thing you might consider trying is snorting a small amount of N-acetylglucosamine powder (taken from a capsule) into your nose, using a drinking straw or similar. I have done this myself many times before, and I find this topical application of NAG into the nose does also help reduce the sinus and nasal inflammation symptoms. The amount of NAG you snort would be something like an eighth (1/8) of a 750 mg NAG capsule (that is, about 100 mg of NAG), so this means your overall bodily dose of NAG is much smaller, and so hopefully will be less of a concern regarding the risk of feeding of Borrelia bacteria.Nothing has stopped my sinus headaches/pressure like that supp before!
I am not too sure, because mostly I take NAG orally. In oral use, I would say that the effect lasts a 8 to 12 hours, though regular long term daily use of NAG seems to have a cumulative effect, in that after some weeks, it generally lowers you baseline level of sinus/nasal inflammation.Awesome tip about snorting the stuff!!! I am going to try that! Generally how long does that last for you when you do it?
Hip, would you recommend these supplements for anyone with anxiety or only those who have had your virus, whatever?
What about magnesium citrate, kava kava, vitamin c., and other supplements listed on the internet?
Uh-huh. And how exactly does pretending that you don't have a disease treat the many muscle, immune, and endocrine abnormalities which cannot be attributed deconditioning or "stress"?Hip
With the recent findings indicating that CFS/ME sufferers could actually be in a state of permanent stress response (which could fit you GAD symptoms closely), it might be worth giving the Lightning Process a go. The process concentrates on realigning how the body reacts to the stress response and negates its affect thus relieving symptoms and in many cases leads to long term cure.
Dster
Another one on this site - incredible. "Phoenix Rising" should be renamed "Closed Minds" or "If you get cured from ME, you ain't never had it". Much more accurate description.Uh-huh. And how exactly does pretending that you don't have a disease treat the many muscle, immune, and endocrine abnormalities which cannot be attributed deconditioning or "stress"?
People have tried it, as well as the "extended versions" known and CBT/GET. They don't work, and the research shows they don't work.
Hip
With the recent findings indicating that CFS/ME sufferers could actually be in a state of permanent stress response (which could fit you GAD symptoms closely), it might be worth giving the Lightning Process a go. The process concentrates on realigning how the body reacts to the stress response and negates its affect thus relieving symptoms and in many cases leads to long term cure.
Dster
Indeed: it took me seven years to try out literally hundreds of different supplements, and to slowly work out which ones were most effective in reducing/eliminating my generalized anxiety disorder (GAD) and the psychosis states that I found came with GAD.Hip,You write that people could try various combinations of the supplements that you mention. But, that could easily take painstaking years.
Possibly some supplements might take months to have effect. But all the supplements listed in this thread start working in a timeframe of 2 to 24 hours. So the benefits are more or less immediate and, in the case of the most effective supplements listed in this thread, the benefits are clear and obvious too.Can't some supplements take at least a couple of weeks if not months to notice a difference? And, one doesn't know whether to wait a month or a week.
I am not aware of any supplements that require liver monitoring and testing. It is extremely unlikely that a supplement would be allowed to go on sale if it did; anything that requires liver monitoring would be made prescription drug.And then, there are liver tests to do a couple of months after starting a new supplement, so it would be necessary to wait every two or three months between supplements. And, if there is a liver problem with a supplement you should probably wait a couple of months before trying another one to give the liver a chance to recuperate.
I was trying a number of supplements upon the advice of a naturopathic doctor (I live in the United States and don't know what they're called in other countries), and they caused a problem with my liver, she was surprised and didn't know which one it was, so I had to stop all of them and start over. I was quite discouraged, and have little money (I receive all my money from the government which is not much after I pay the residence where I am staying). So, there is also a money issue for me as well.
I think your questions are good ones.What do you think about what I've written?
ME/CFS is chronic fatigue syndrome (also called myalgic encephalomyelitis).what is ME/CFS? (I came onto this website because of this thread talking about supplements for anxiety.)
The etiology of GAD is not well understood, and at present the evidence for a viral / microbial cause to GAD is limited. Science still has a long way to come in this respect. Studies have found cytomegalovirus to be linked to anxiety, but my hunch is that anxiety may be caused by other microbes too (most likely from the inflammation response microbe elicit). I am very interested in microbe-disease connections, and I subscribe to the view that many common diseases of currently unknown etiology (and both mental and physical diseases) will turn out to be caused in part by microbial infections.Does a virus always come with anxiety, or generalized anxiety disorder? Can any virus cause GAD, or only a specific one? Which one? (Or, maybe none?)
It's possible, but | have not come across this before. I know in autism a fever actually reduces autism symptoms, which is interesting (look up: autism fever effect).Does fever also come with virus and/or anxiety? (I think when I am extremely anxious or angry I may get a fever of about 101.5 F; I think it may have happened twice over the last 2 or three years.)
I have had actual psychosis come with my anxiety (or general anxiety disorder). And, my psychiatrist thinks the anxiety causes the psychosis, so that I may be in a permanently psychotic state if not for the antipsychotic and antianxiety medications I am taking.
With the severity of my anxiety - the psychosis that comes with it, do you still think the supplements you mention would greatly help?
Firstly, OMG! N-Acetyl Glucosamine is amazing within 2-3 hours of taking it, all of my physical symptoms of my GAD vanished like nothing else and has been sustainably for the past 10 days.
Only draw back is...I think i may in some way be allergic to the NAG, on day two i jumped up to 1500mg from 750mg and that night a small itchy skin rash appeared on my right ankle, I stopped taking it for a couple days and started again on 500mg and no rash problems however i've noticed from taking it consistently for the past 4 days, to day and yesterday my heart rate has been a lot higher used to range from 52-80 around the house.
Do you have any suggestions who I can seek out regarding N-Acetyl Glucosamine, its just so miraculous the effect it has on all my symptoms - I dont want to stop taking it but, as you can understand the negative health side effects my bodily system is having to it is concerning.
I wish there was someone who specialised in NAG, who understood its effect on the brain and how it dissipates the GAD, any help would be awesome! Cheers, Ryan