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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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If only OMF will fund Prusty, he will find a solution for the problem. At least the mito fragmentation and its immediate cause can be removed thereby giving us freedom from fatigue. @sebaaa You watched the full presentation right ? You said Prusty has narrowed down the factors in the serum to 3 One is the antibody to C1q, exosomes containing mRNA and viral proteins.
I dont know why Fatigatio ev is not yet uploading the recordings to their youtube channel. They are making it available through USB stick for 5 euros. Why do so ? They are not profit minded. Then why not just clip the videos and post them.
I think it’s interesting that exosomes is one of the 3 things he narrowed it down to. Because a while back at a NIH conference, Ron Davis said that his work indicates that the factor in the blood responsible for the CFS specific effects in the nanoneedle are exosomes
This stuck with me. fragmentation of mitochondria is perfectly correlated to the severity
OMF is not funding Prusty's work. This is very unfortunate.
Wouldn't a fragmentation inhibitor like Mdivi-1 be even more useful?Also the nanoneedle signal getting normalized by SS-31, a drug that inhibits mitochondria framentation. Which is exactly what prusty says is wrong with our cells.
There is no collaboration between OMF and Prusty.
for me there's at least 3 extremely significant developments. Prusty, DecodeME, and Long Covid.
@sebaaa its the same, one is used in the US and one in the EU to describe the disease. But some ppl will fight you to the death that its not. And will use fringe symptom differences to differentiate them. Its absurd.
Others claim Cfs/ME isnt a diagnosis at all. Because they dont understand the concept of an exclusion diagnosis.
So as you can see, it can get messy sometimes
no treatments for it in the UK
He apparently thinks that they’re all different things. Because one person pointed out how he listed them separately, and he replied that he was glad they noticed that because it was intentional
That was Dr. Montoya asking the first question at the end of Prusty’s presentation. I wonder what Montoya is up to now in terms of research and his next stepsPrusty is the guy who added me/cfs serum to cells and was able to watch the mitochondria react by splitting up into small pieces (mitochondrial fission).
You can see the picture of that at the 16;52 mark of this video
more details on prusty here:
https://forums.phoenixrising.me/thr...ething-in-the-serum-of-me-cfs-patients.75920/