Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Hi Fredd, you mentioned a website I thought was www.wrongdiagnosis.com with several people trying the B12 protocol, I could not find the B12 section. Today I need some encouragement that I am heading in the right direction with this treatment maybe if I could see people getting better it might help. Thanks.
Lena
Hey freddd.
A lady, who testified before a CDC commitee today, mentioned some people are having great success with an active b12 protocol that sounds a lot like the one you use and help people with here. They also mentioned other threapies, but the b12 protocol got the most attention from one lady who has gone to every corner of the world looking for "healing modalities".
I am optomistic I may be one of those lucky few based on some of responses to this point, however I realize everybody is a bit different.
Still got to go all out, but my sleep sure is better with what I have done so far. It seems as though I almost benefit when taking the vitamins and minerals right at the same time I pop a losenge.
Anyways, Thanks!
Mark
Hi Fredd, I am reading the posts from Sally Pacholok and ordered the book "Could It be B12". What are your thoughts on her recommendations. I have a Dr out of town who I may go see and have the MMA test & homocysteine test but since I have been taking B12s the Serum B12 will be skewed. How long after you are off B12s will the test be more accurate. Also if I did get the hydroxocobalamin injections would you still need to take B-right, adb12, folate and mb12. Also in getting the injections would the reactions be as severe as mb12 can be. I have not read through all the 1000 of pages yet. Thank you for your thoughts on this.
Lena
Hi Freddd,
Ever hear of anyone having an allergic reaction to a B12 injection (or some aspect of it)? I have red, itchy welts on the surface of the skin in the location of my injections...they have developed over several days and have caused me to postpone continuing with them. I've given myself injections in the past for other reasons and have never experienced this sort of reaction (though at those times I was comparatively rather healthy). I was told my mixture contained only B12 (though likely saline or something also - I will look into this, but wanted to see if you had any experience with it too)
I'm not sure what to think...
Velha