Hi all. I thought I would post an update. I have been on the b12 protocol since February. The first month or so, even though going through mild start-up effects, I was actually seeing progress. I was really excited, as well as my family. Life was looking up, I had hope, and was thinking about my future and being able to go back to work. The great thing was my depression was gone, joint pain disappeared, my anxiety was lessening, sleep was improving and energy was increasing enough for me to start mild exercise. The only thing that seemed to worsen was digestive pain and tinnitus.
About a month or so into the protocol, I crashed really hard. It stared with what I believe was an accidental food exposure to MSG. Starting that night, the wheels started to come apart. My digestion tanked with horrible abdominal pain and gas. All my original symptoms worsen greatly, particularly my CNS symptoms.
A week after, I also had a biopsy on a skin lesion and was diagnose with Actinic Keratosis. I reacted negatively to the injection she gave to numb the spot on my face. I am really sensitive to these type of things. I started treatment about a week or so after diagnoses with a natural cancer cream made from eggplant extract.
I had negative reactions to this as well with swelling of my face, which is suppose to be normal to have swelling around the spot. But my swelling extended to my whole side of my face and lips. The spot was near my temple. During treatment, I continued to remain in my crash and had to isolate myself to my bedroom. All functionality came to a halt. Even showering became a chore like in my early days of my illness.
I discontinued treatment a couple of days ago and want to get back to healing. At this point, I don't know what to do. I am taking all the basics, except vitamin c. I take very little. It tears my gut up too much and causes worsening of my symptoms. I also am not taking fish oil as I can't tolerate it. I eliminated all folic acid about 2 - 3 weeks ago. I am taking 20mg of mb12, 4,800mcg of folate, and I am still playing with adb12. I just can't seem to find the right balance.
Since my crash, I am sick now 24/7. I spend much of my time in bed now. I can't even do simple chores like before. I can't even be around my family as it is too stimulating. Where I was able to make dinner daily for my family, they are pretty much on their own now. They are so busy, that I don't have anyone to take care of me. I am so nauseated, just looking at food makes me feel worse.
Under the recommendation of a woman who's son had severe dysbiosis, I am consulting with her practitioner who helped her son recover. She works with severly chronically ill patients with lyme, autism, and people who have had adverse reactions to toxin and medication.
I have tried all sorts of digestive supplements and am still on them, but since starting the b12 protocol, my digestive pain and nausea has only gotten worse. I am at a lost. I don't know what to do. I don't know if all that I have been through with the cancer treatment the last month just set me back, particularly since the crash proceeded it.
My new practitioner wants me to stay the course with the protocol as she said that I need some nourishment and she has a lot of autism patients that are treating methylation while doing her treatment (mostly homeopathy) and are having great success. Actually she shared that many were struggling with the methylation prior to introducing the homeopathic treatment. She works on the vital force and resestablishing the body's ability to heal itself.
Things I know, I have dysbiosis (untreated to date). My practitioner said she is going to work on this. I take hcl, digestive enzymes, and Beta TCP for my liver/gallbladder.
I am on oral bioidentical hormone replacement and have a really hard time changing doses. It throws me into a nasty crash each time. So my doctors want to work around that for now and not make changes yet. What I do know is this is probably keeping my gut from healing as hormones are really hard to process, particularly the oral ones.
Any suggestions would be greatly appreciated. I am ready to quit as I am just feeling so bad. It is even effecting my moods and I feel mad and come across aggressive all the time now. This isn't me! My family has about had it with me. I have also become overly sensitive to everything emotionally and cry a lot now.
I am beginning treatment with my new practitioner this week. I am hoping she has come answers. I was getting ready to add in the cofactors, but I can't afford to get worse. I am already on the edge and am afraid of where this will go.
I am so glad to see that there are many who are responding to the methylation/b12 protocol. I wish everyone continued healing. I just hope I will be able to join the ranks of those who are getting well soon. Even though I am happy for the successes, it is hard for me at the same time because it isn't helping me.
Take care and healing wishes to everyone,
Shelly
