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Blog entries by Dainty

My bridal gown was huge and gorgeous. And also impractical. I could hardly go anywhere on my own, and my dad had just told me to stay put or else...
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358
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4
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I feel like I should keep writing these even though they seem somewhat boring. Progress is slow, and I work hard for it in ways people don't see...
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223
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2
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(I originally published this on private social media about 9 months ago. It is geared towards people unfamiliar with our types of struggles. I...
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232
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3
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Last week was hell. It's the hardest I have pushed myself since my years of being mostly bedridden. That was the case even before the viral bug...
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156
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I was participating in one of the fiery threads when I got this thrown at me: What a weird and inflammatory thing to say. We'll need to put...
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323
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7
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I was raised by a mom that's fluent in ancient Greek and taught logic classes on the side. From her I learned that conflict resolution was all...
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311
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6
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I went in for another treatment about a week ago. I hadn't been there in a while, due to expenses. But I knew my body needed it. He taught me...
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315
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8
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I used to share a lot of these, but it's been a while. I'm still "doing the process" of healing, as my osteo and those close to me have come to...
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287
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5
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I'm sitting here sipping hot Egyptian Licorice tea watching the morning rays topple through the window. I can't remember the last time I felt this...
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238
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4
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I got a job! This is significant, as it's the first time in my life I have ever been an employee. Previously I was always too ill, ever since a...
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358
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(Hope you all don't mind me posting something here that has nothing to do with ME/CFS. There's been a major change to my life via my partner's job...
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169
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2
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So I have a new primary doctor. I never really expect the doctors who take medicaid to actually help much, but I've found that they can at least...
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224
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3
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Many of you are familiar with the basics of my story. Mostly bedridden for 8.5 years, then significant improvement from a combination of n...
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548
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16
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So, I recently got 3 teeth pulled. They were all infected, so they had to go. Predictably, my body crashed - I slept about 22 hours/day for 3...
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359
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Today I watched that amazing TED talk by Jennifer Brea for the first time. And it all comes flooding back. The non-stop wall of pain. The...
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215
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3
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Intro Many of you once knew me as one of the sickest patients on here. I can still remember the days where all I could handle was the chatroom...
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306
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7
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Being disabled gets to me sometimes. Usually I can shake it off. When an unexpected loud noise causes me to suddenly shriek and collapse? Ahem...
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220
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I'm still living in a van. A minivan, now, to blend in better. I find that with a handicap placard and the ability to have my entire "home"...
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250
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