Blog entries by Dainty
My bridal gown was huge and gorgeous. And also impractical. I could hardly go anywhere on my own, and my dad had just told me to stay put or else...
I feel like I should keep writing these even though they seem somewhat boring. Progress is slow, and I work hard for it in ways people don't see...
(I originally published this on private social media about 9 months ago. It is geared towards people unfamiliar with our types of struggles. I...
Last week was hell.
It's the hardest I have pushed myself since my years of being mostly bedridden. That was the case even before the viral bug...
I was participating in one of the fiery threads when I got this thrown at me:
What a weird and inflammatory thing to say.
We'll need to put...
I was raised by a mom that's fluent in ancient Greek and taught logic classes on the side.
From her I learned that conflict resolution was all...
I went in for another treatment about a week ago. I hadn't been there in a while, due to expenses. But I knew my body needed it.
He taught me...
I used to share a lot of these, but it's been a while. I'm still "doing the process" of healing, as my osteo and those close to me have come to...
I'm sitting here sipping hot Egyptian Licorice tea watching the morning rays topple through the window. I can't remember the last time I felt this...
I got a job!
This is significant, as it's the first time in my life I have ever been an employee. Previously I was always too ill, ever since a...
(Hope you all don't mind me posting something here that has nothing to do with ME/CFS. There's been a major change to my life via my partner's job...
So I have a new primary doctor. I never really expect the doctors who take medicaid to actually help much, but I've found that they can at least...
Many of you are familiar with the basics of my story. Mostly bedridden for 8.5 years, then significant improvement from a combination of n...
So, I recently got 3 teeth pulled. They were all infected, so they had to go.
Predictably, my body crashed - I slept about 22 hours/day for 3...
Today I watched that amazing TED talk by Jennifer Brea for the first time.
And it all comes flooding back. The non-stop wall of pain. The...
Intro
Many of you once knew me as one of the sickest patients on here. I can still remember the days where all I could handle was the chatroom...
Being disabled gets to me sometimes.
Usually I can shake it off. When an unexpected loud noise causes me to suddenly shriek and collapse? Ahem...
I'm still living in a van. A minivan, now, to blend in better.
I find that with a handicap placard and the ability to have my entire "home"...