I am already in touch with her. She told me that she doesn’t necessarily identify as an ME patient but as hEDS/ severe POTS. but she did have PEM (she said worse after every activity). So she sounds like an ME patient. She says that since surgery she is less tired, less brain fog, can tolerate light and sound and social activity. So she does seem to be doing quite a bit better, if not fully recovered.
This is a public forum, and I don’t want to expose information about her that she has not shared on her Facebook profile or in public groups. But I think she has been open about not doing well this summer (although, as she writes on her profile, the past week she’s fortunately better) and about getting a personal assistant to help with daily needs. Generally speaking; even though some symptoms improve, other symptoms can worsen or persist so that the functional level is (mainly) unchanged.