ME/CFS Diagnostic Criteria in Australia
"Chronic fatigue syndrome - Clinical practice guidlines 1997" produced by a Working Group convened under the auspices of The Royal Australasian College of Clinicians
http://www.tnq-support-group.net/cfs...-overview.html(html)
http://www.myalgic-encephalomyelitis...-overview.html(html) pdf links on either site.
"Chronic fatigue syndrome - Clinical practice guidlines 2002" produced by a Working Group convened under the auspices of The Royal Australasian College of Clinicians
http://www.mja.com.au/public/guides/cfs/cfs2.html(html)
http://www.mja.com.au/public/guides/cfs/cfs2.pdf(pdf)
The ME/CFS guidelines, Management Guidelines for General Practioners (sponsored by the Sth Aust government and others) 2004
http://www.oiresource.com/pdf/mecfs.pdf These guidelines recommend the 2003 Canadian Clinical Criteria.
From 2005 the "Overview of a Clinical Case Definition and Guidelines for Medical Practioners, An Overview of the Canadian Consensus Document"
Authored by Bruce M. Carruthers and Marjorie I. van de Sande, came into use (Sth Australia). The inside of the front cover page of the booklet (capitals and all) states:
The Adelaide Forum agreed to UNANIMOUSLY EMBRACE THE CANADIAN CASE DEFINITION
with a strong recommendation that it also be taken up by ME/CFS societies.
(Excerpt from the review of the Adelaide Forum, Australia, 2005)
Micheal Barratt, MBBS, FRCPA
Medical Adviser, Alison Hunter Memorial Foundation, Australia
ME/CFS in Parliament
On XMRV testing and medicare
http://parlinfo.aph.gov.au/parlInfo/...sCount=Default
ME/CFS Funding and Government ME/CFS funding
Important Australian Research Relevant to ME/CFS
Lactic acid (1995) The Adelaide CFS Research Group, Adelaide University,
http://sacfs.asn.au/medical/adelaide_uni_research_1.htm
Lactate research, University of Adelaide
http://sacfs.asn.au/medical/adelaide_uni_research_2.htm
Potassium (total body), Royal Adelaide Hospital and University of Adelaide
http://sacfs.asn.au/medical/adelaide_uni_research_3.htm
Rickettsiae, John Graham, Flinders University, Sth Australia
http://sacfs.asn.au/medical/adelaide_research.htm
Hematologic and urinary Excretion Anomalies (2007) University of Newcastle
http://www.ncbi.nlm.nih.gov/pubmed/17720950
Icreased d-lactic Acid Intestinal Bacteria (2009) Institute of Biotechnology and Molecular Science
http://www.ncbi.nlm.nih.gov/pubmed/19567398
Long term persistance of Q fever (2010) *for the Q fever ME/CFS subgroup, Australian Rickettsial Reference Laboratory
http://www.ncbi.nlm.nih.gov/pubmed/20639288
Australian ME/CFS Reported Deaths
19 yr old Alison Hunter of Sydney died 1996. "In the end, heart damage, massive ulceration to her throat, failure of her gut and bowel and horrendous neurological symptoms, conspired to defeat her." [1]
www.ahmf.org/smh040502.html
* Alison gave a speech in Ireland at the International Meeting on CFS when she was 17.
www.ahmf.org/speech.html.
Tracey Lee Ash, 26 from Adelaide, died on March 7, 2002 from CFIDS/ME related causes. "Tracey battled with CFIDS/ME/FMS and multiple chemical sensitivities for many years. Tracey constantly searched for new possibilities of getting well, but in the end wellness became a faded and unreachable distant light." [2]
http://sacfs.asn.au/publications/tal...tracey_ash.htm
ME/CFS and the Law
Queensland mother fights to get daughter back (1999)
www.abc.net.au/7.30/stories/s21850.htm
Current Australian ME/CFS Events
Australia - National radio interview on the topic 'Exploring ME/CFS' - Podcast (23 August 2010)
Featuring Dr Donald Lewis (CFS Discovery) and Mr Leigh Hatcher (Sky News reporter and has ME/CFS). Radio ABC Tony Delroy Nightlife Podcast now available.
http://www.abc.net.au/nightlife/podcast.htm 19MB
Coming Australian ME/CFS Events
Dr Byron Hyde - Saturday September 18th 2010, 12.30pm - 3.30pm - 'Doctor, do I have ME/CFS?'
Melbourne Town Hall, Supper Room (level 3), Swanston Street Melbourne.
International visiting medical expert Dr Byron Hyde will discuss the latest research and clinical practice concerning ME/CFS. The session is open to patients, medical practitioners, allied health professionals, policy advisors, academics and community members.
Cost: $12.50 for members of ME/CFS Victoria; $25 for non-members. Download the registration form here.
Planned visits also to:
Australian Capital Territory: 1st week in September (
http://www.mecfscanberra.org.au/)
New South Wales: 7th & 8th September (
http://www.me-cfs.org.au/)
Western Australia: 9th - 12th September (
http://www.mecfswa.org.au/)
Tasmania: 15th & 16th September (
http://www.mecfs-vic.org.au/)
Victoria: 17th & 18th September (
http://www.mecfs-vic.org.au/)
Times and venues will be posted as soon as they are confirmed. Please contact the ME/CFS organisation in your Australian state or territory for updates and more information.
References
[1]
www.ahmf.org/smh040502.html
[2]
http://www.blueribboncampaignforme.o..._Memorial.html