Struggling bad about getting Covid Vaccine

[Fighttolive]

Previous Covid here, relatively mild course, though I have nonstop muscle twitching now.

In the USA here, I’m really struggling with getting vaccinated, I feel like this go-around I’m not going to be able to avoid delta. I live at home and half of my family
Is here is very anti-Covid vaccine.

im in a good place energy/crash wise and I’m worried the vaccine will wreck my immune system…but another bout of Covid could as well.

sigh, just venting

 

[hapl808]

Wouldn't it be nice if they ever included people like us in any of the vaccine studies or trials? Instead we're flying blind. We believe in medicine, but medicine doesn't believe in us.

 

[Abrin]

im in a good place energy/crash wise and I’m worried the vaccine will wreck my immune system…but another bout of Covid could as well.
sigh, just venting

I completely understand your venting. It is a hard situation to have to decide. There is really no easy answers.

When I got the vaccine myself, I felt like I was essentially playing 'Russian Roulette' with all the hard worn gains I have made against this illness. I had heard of people in ME/CFS groups that were perfectly fine afterwards and I had heard of people in ME/CFS groups who the vaccine had caused a major backslide for.

Eventually when it came to personal risk assessment the choice was forcefully tipped because the city that I live in became one of the hottest spot for Delta in the whole country.

I got lucky and had no after-effects but I also know that there is no guarantee that everyone's story will have the same happy ending. All you can do is cross your fingers and hope for the best, which is a truly terrifying way to have to make a life-changing decisions.

 

[Jessie~]

I am struggling too! I keep deciding to make my appointment soon and get it over with, no matter what, how bad, or how long the side effects last. Then I get worried and put it off again. (Ultimately I would like to avoid Covid AND avoid any long term or lifelong Covid vaccine effects). I feel like with the delta variant, I am not safe from getting Covid with the vaccine… yet if I get it after vaccinated it may possibly mean the difference between mild or severe, life or death.

I live alone and have been isolating, and distancing OUTDOORS ONLY to stay safe all of this time. I wear my mask when I do a grocery pick up or get gas, and I order everything I need online that can possibly be shipped to my house. But I have been avoiding all of my important doctors dental and vision stuff, most family visits, and some vehicle maintenance, and can’t safely keep that up much longer.

Some of my family is currently not getting vaccinated- so I will only see them rarely outdoors and distanced. Some of my family is vaccinated and going about life like normal, but I know that they could still get Covid and still give me Covid- so I will only see them rarely outdoors and distanced too. Nobody feels safe to be around in close contact or enclosed spaces yet. I am very glad that I can keep in touch by phone calls, text messages, emails, cards, and letters throughout this difficult time.

I really wanted to wait until a better vaccine comes out. But I don’t see that happening soon enough.

I am very grateful for everyone here that is sharing their Covid and Covid vaccine experiences on this forum. It is helpful information…

When I watch news reports, they either don’t include people with our illness in their findings, or they overlook us and minimize our existence and experience… I don’t feel that the information is safely including or considering someone like me when they keep saying “Just get the vaccine!… It is safe.”

 

[ljimbo423]

im in a good place energy/crash wise and I’m worried the vaccine will wreck my immune system…but another bout of Covid could as well.

I'm having the same struggle.

I have good energy, and have had mild covid twice over about a 9 month period. I don't want to get the new Delta variant of covid and worsen my ME/CFS. I also don't want the vaccine to do that.

 

[SnappingTurtle]

I got lucky and had no after-effects but I also know that there is no guarantee that everyone's story will have the same happy ending. All you can do is cross your fingers and hope for the best, which is a truly terrifying way to have to make a life-changing decisions

I am lucky, too, in fact my PEM seems gone... but like said above, there are no guarantees. I wish you luck in the decision making.

 

[bensmith]

Same, very ill and havent yet. I fear delta, i know uts coming for me. But i just xant ge tthe vaccine knowing it can make me worse. Getting through the day is hard enough. My family wont protect me further either. I wisj theu would till wave over(likely 2 months). So scared.

 

[nerd]

I'm still waiting for Novavax. I'm worried about the effects on the innate immune system. Novavax doesn't have this problem. It should just trigger adaptive immunity and not the whole chain of the immune system that might participate in ME pathophysiology. The only thing that might cause issues is the immunity enhancing adjuvant. But I expect it to be safer because it's limited to the muscle, unlike the mRNA from mRNA viruses.

I'm not worried about delta, though. I already take Ivermectin and Vitamin D. The vaccine is just additional protection.

 

[5vforest]

I'm just gonna say it: there is so much pressure to get the vaccine that it's easy to forget that some of us might be fine without it.

Personally, I am housebound and my only contact is with my carer who takes precautions when out.

My own risk calculation is that it is less risky for me to continue going unvaccinated.

Obviously this will differ for everyone, but I feel as though it's worth saying because of the immense pressure to get the vaccine. I believe my specialist(s) recognize my logic, but none of the other healthcare professionals that I have contact with can even fathom it.

 

[Mouse girl]

For the general public, I urge people to get vaccinated now. But with fellow patients here, I can understand being scared so I don't feel the need to urge someone one way or the other. I got moderna as soon as I could.

 

[Fighttolive]

I'm just gonna say it: there is so much pressure to get the vaccine that it's easy to forget that some of us might be fine without it.

Personally, I am housebound and my only contact is with my carer who takes precautions when out.

My own risk calculation is that it is less risky for me to continue going unvaccinated.

Obviously this will differ for everyone, but I feel as though it's worth saying because of the immense pressure to get the vaccine. I believe my specialist(s) recognize my logic, but none of the other healthcare professionals that I have contact with can even fathom it.

This is how I feel also- with Delta are the previous data points the same?

Is it more severe? Less? I know in virology usually things mutate to be transmissible and less deadly…but I don’t know anymore.

also Is my immune system prepped now for it and I could have another mild case?

so many questions and when you express hesitancy about getting it they ask “what’s wrong with you?” I wish I knew!!

I drive an unvaccinated person to the airport every now and then, so I’m worried. I wear a NIOSH N95 and sunglasses. Hoping that would work.

 

[Fighttolive]

I'm still waiting for Novavax. I'm worried about the effects on the innate immune system. Novavax doesn't have this problem. It should just trigger adaptive immunity and not the whole chain of the immune system that might participate in ME pathophysiology. The only thing that might cause issues is the immunity enhancing adjuvant. But I expect it to be safer because it's limited to the muscle, unlike the mRNA from mRNA viruses.

I'm not worried about delta, though. I already take Ivermectin and Vitamin D. The vaccine is just additional protection.

how do you get ivermectin?! Here in USA it’s so hard to get. But I’ve read some great studies on it

 

[livinglighter]

I was worried about getting the vaccine and suffering a relapse, etc. In the end I just got the vaccine and I was expecting the worst to happen. So far I’ve only suffered a sore arm. Unfortunately it’s a gamble for us.

 

[Rufous McKinney]

how do you get ivermectin?! Here in USA it’s so hard to get. But I’ve read some great studies on it

My GP gave me a RX for ivermectin- eight pills you take over two days if you think your coming down with COVID.

He did not give me a prophylatic ivermectin RX- which I suspect does not exist. Ivermectin is taken short term.

So I suspect it IS hard to get ivermectin for prophylactic use.

 

[andyguitar]

I wear a NIOSH N95 and sunglasses. Hoping that would work.

It will help protect you that's for sure.

 

[andyguitar]

This is how I feel also- with Delta are the previous data points the same?

Is it more severe? Less? I know in virology usually things mutate to be transmissible and less deadly…but I don’t know anymore.

Delta looks worse in all respects.

also Is my immune system prepped now for it and I could have another mild case?

Yes it might give you some protection. And there's the problem. Might. Depends on how long antibodies from a past infection last. And could the Delta variant get round them?

 

[Rufous McKinney]

I'm going in Tuesday- so no more cowering...

 

[ljimbo423]

Yes it might give you some protection. And there's the problem. Might. Depends on how long antibodies from a past infection last. And could the Delta variant get round them?

I got Covid twice a little over 9 months apart. The research I've done, says people lose most of their immunity by 6-8 months after a Covid infection. As you point out, the Delta variant might get past any immunity even sooner.

To protect the global population from COVID-19, it is vital to develop anti-SARS-CoV-2 immunity via natural infection or vaccination.

However, in COVID-19 recovered individuals, a sharp decline in humoral immunity has been observed after 6 – 8 months of symptom onset.

The short durability of anti-SARS-CoV-2 immunity is the primary cause of viral reinfection and COVID-19 recurrence.

https://www.news-medical.net/news/2...2-immunity-may-depend-on-ABO-blood-group.aspx

 

[andyguitar]

The research I've done, says people loose most of their immunity by 6-8 months after a Covid infection.

But T memory cells might give some protection for a while after levels of antibodies have dropped. In SARS CoV-1 they were still present for between 6-11 years after infection. But I dont think I would rely on that to protect me. Booster jab for me thanks!

 

[Booble]

I'm going in Tuesday- so no more cowering...

Good luck, Ruf!