Hi Pam,
Sorbitol or Xylitol and both of these give me horrendous migraines that are unbearable
Sorbitol is a sugar alcohol that occurs naturally in such
foods as apples and prunes
.../ I am fine with those foods but can only tolerate a tiny amount otherwise there is too much sugar and I feel terrible with aching muscles. My blood sugar also goes too high with too much sugar and then drops badly later so I don't ever eat more than 1/4 apple with some cheese and then its no good if I do any exercise after.
It (
Xylitol) is found in the
fibers of many
fruits and
vegetables, including various
berries,
corn husks,
oats, and
mushrooms.
[2] It can be extracted from corn fiber,
[3] birch,
raspberries,
plums, and
corn.
http://en.wikipedia.org/wiki/Xylitol
Sorbitol is found in apples, pears, peaches, and prunes
http://en.wikipedia.org/wiki/Sorbitol
So the question is do plums, pears, peaches, raspberries, apples, mushrooms, oats and corn give you killer headaches? Plums (prunes), containing both sorbitol and xylitol ought to be a double whammy. A single bite of many fruits contains a lot more sweet alcohol than any of those tablets.
... See my answer above
I guess its unlikely that the B12s on their own could cause horrendous daily migraines?
I'm not entirely sure of that. Let's consider the circumstances under which it could.
I have way too much experience with headaches. From about 1985 to 1995 I had chronic daily headaches and each two weeks like a clockwork, 3-5 day killer headaches. From 1989 when I was in a phase III Stadol study until 1995 I kept track of each headache, their characteristics and differences, all medications used and what if anything would abort them. I had them all in Supercalc 5 (spreadsheet like excel) and they made some very interesting graphs which allowed me to solve the problem of how to end them quickly after I succeeded in doing so 3 times in 7 years. Then a permanent end was put to them between May 21, 2003 and about 2 years later by removing the cause. While in referring to them many people called them "migraines" they were not actually migraines.
http://en.wikipedia.org/wiki/Migraine
The typical migraine headache is unilateral pain (affecting one half of the head) and pulsating in nature and lasting from 4 to 72 hours; symptoms include
nausea,
vomiting,
photophobia (increased sensitivity to light),
phonophobia (increased sensitivity to sound); the symptoms are generally aggravated by routine activity.
[3][4] Approximately one-third of people who suffer from migraine headaches perceive an
auraunusual visual, olfactory, or other sensory experiences that are a sign that the migraine will soon occur.
[5]
And the article has a lot of other things about migraines.
... They are definitely migraines, always one-sided but start swopping sides as the days go on until the Acupuncture puts a stop to it. I have never had nausea with the migraines but sometimes photophobia. Sometimes I get dizzy and have numbness down one side of my body with the migraines. They make me feel so ill that they become intolerable and to be honest life isn't worth living they are so bad.
... Also my neck and shoulders become full of knots that are like golf balls when I have these migraines. When not taking the B12s I don't have this problem at all. My neck and shoulders are fine.
I had a damaged neck and demyelinated areas in my neck. When a certain movement that would send shocks and icepick pains down my body I would also get an instantaneous severe headache in about 1/4 second.
I had inflamed veins in my scalp. Every muscle in my neck and head was tight and so painful that a light touch would put me through the roof. My neck was forced into a reverse of the normal curvature.
When any of these pains intensified by the muscles going into a big spasm or whatever I would feel it as a headache. Just as earphones can give the illusion of sound in the middle of your head, pains in the "helmet" of muscles and veins around the head can "stereo locate" as a headache inside your head.
Right now, Botox is sometimes used to relax these muscles in the neck and head that trigger terrible headaches. If a person has used botox for that, each dose of at least methylb12 will neutralize the Botox for about a day allowing the headache to return very rapidly.
The inflamed veins, inflamed endothelial tissues, can be caused by faulty tissue generation caused by lack of mb12 and/or methylfolate.
The tight tender muscles can be caused by neurological problems with mb12,adb12 and methylfolate deficiencies at the causes, as there are about 10 separate types of pains and causes of these pains involving these muscles. So if the neurological cause is still present and you feed the muscle adb12 suddenly it can make stronger contractions and trigger terrible headaches. Likewise if the neurological problems heal but the adb12 is still missing, the same "exhausted contraction" continues with severe pain and headaches. It took about two years of the active mb12 and adb12 with cofactors for all my muscles to be able to heal and repair and grow to sufficient capacity that the pains went away. The reverse curvature forced by tight muscles is a hallmark symptom of M.E.
The tightness and pain in the muscles are a combination of things so no one thing fixes it. With my doc I learned how to abort the headaches after 7 years. It required a combination of Valium and any of several pain meds like oxycodone, morphine or Stadol taken early in the headache and then a mini taper with diminishing doses each 2.5 hours to to keep it from coming back. 3 hours between and it would be back.
....My neck muscles aren't tight when I don't have the migraines. I have never found anything that stops my migraines apart from Acupunture with a Chinese doctor I see.
Mb12 can cause these headaches to kick up since the intensity of nerve signal increases and the nerves and muscles are still damaged resulting in terrible headaches. The headaches can also be caused when a person who has a very low level of accommodation to benzos hits about the 5th serum halflife period without taking at least a little which is why benzos have to be tapered to very low levels, they cause all sorts of rebound problems. At high accommodation levels improper withdrawal from benzos can cause seizures.
....I don't take benzos apart from the odd 1/4 of a 0.5 mg clonazapan at night so its definitely not connected to that.
I think a good place to start is changing to a different B-complex without any folic acid at all. The best I've found (from the listed ingredient list) so far is the Douglas Labs.
....I am still sticking with the 1/2 B Right because I am sleeping so much better since starting it. I just go to sleep naturally something I haven't been able to do for so long I cannot remember! Its a very natural sleep and I sleep for so much longer, usually around 6 hours. Then I take my steroid and thyroid meds and go back to sleep till 7.40 am which is great. When I have used this up I will order the one you mentioned. Do Iherb sell it?
Your energy response is very indicative of just how much you need the adb12. Source Natural makes a dibencozide sublingual of unknown effectiveness right now. I am going to test them but I have to wait long enough that I would be able to feel it. Somebody else has suggested the Dibol brand oral capsule as being effective for them. As my testing cycle with adb12 is about a month between brands it will take a while for me to test them. You could try it and see if either brand works for you by producing the energy.
...Once established again on the new MB12 I will try just 1/2 of the AdnB12 I have for a last time and see how long I can tolerate it. If I cannot I will order the one you mention.
I just want to add that after 4 days of no folic acid I am feeling better each day.
