Good luck when you see the endocrinologist. That's a very long time to wait to see such a specialist, isn't it? Please get back to us......who knows, you may find something out that would be useful. Yours, Lenora.
Vitamin D, omega-3 supplements reduced risk for incident autoimmune disease
The use of vitamin D3 or omega-3 fatty acid supplements over a 5-year period may reduce the incidence of autoimmune disease in older adults by 25% to 30%, according to data presented at ACR Convergence 2021.
“In past ecologic observations, inflammatory bowel disease, multiple sclerosis and type 2 diabetes have been shown to be more prevalent at northern latitudes, where circulating vitamin D levels are lower,” Karen Costenbader, MD, MPH, director of the Lupus Program at Brigham and Women's Hospital, told attendees at the virtual meeting. “Both high plasma 25-OH vitamin D and high residential UV exposure were associated with a decreased risk for rheumatoid arthritis among women in the Nurses’ Health Study in our past work.”
Monday I have seen the endocrinologist and was, for the first time, impressed. The receptionists were very professional and respectful. The young Dr. took her time and read my very long med-history. At the end of almost an hour analyzing everything incl. my brain MRT, she came to the same conclusion my Endo-Dr in the US did. She believes, I have inflammation in the brain. She belives my pituitary cannot fully function because the brainstem has a slide kink forward, pressing the hypothalamus and pituitary. However, to be sure she is also testing the adrenal gland function first. But first, I have to get off prednison step by step - in 7 days. After, she will determine the dose of hydrocortisone. She was shocked how the oncologist neglected my MCAS condition.
Good news @SWAlexander. Often the younger ones will put a lot of time (which we need) into the problem before them.
I'm not making a diagnosis here, but it sounds like you may have a possible Arnold-Chiari Malformation Syndrome, which can be helped by surgery. I had it about 35-39 years ago and it stopped the progression of my problem, together with another illness I had surgery for, Syringomyelia. Odd as at one time I had a pituitary tumor also...cured with a medication that I took for years.
She sounded very thorough, like she knew what she was talking about and that's great. Good news! Yours, L.