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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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A

Aidan Walsh

Senior Member
Messages
373
I may have found my cause of my illness aside from an enlarged kidney. I went back over all my alpha gal meat allergy tests all were Negative but I searched to why my Alpha Gal Alpha Galactose-Alpha Galactosaide was so very low & non existent.

Anything below 1.2 AG is indicative of FABRY DISEASE I need enzyme replacement therapy every 2 weeks my AG was only 0.01 which means I am deficient in this enzyme I have none at all
 
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