Heheh..thanksJust don’t be taking it alone (if it’s your first time)
Reduced Parasympathetic Reactivation during Recovery from Exercise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
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Thanks for that. I deffo had some early trauma. It must impact on the genetics but I think that's what comes first. My brother went through smthg similar and has PTSD symptoms but he seems to be able to recover continually.
But if I could stop those PTSD symptoms, surely my body would it improve?
But if I could stop those PTSD symptoms, surely my body would it improve?
SWAlexander
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Oliver3 you asked.
"But if I could stop those PTSD symptoms, surely my body would it improve?"
As you may have read there are many issues involved.
On the Psychological side; are you able to talk or write about your past experience?
Not that it presents the perfect solution, but hiding negative experience drives the whole body. Your Amygdala (our black box) is always reflecting, comparing and warning. That drives up the hormone levels.
On the hormonal part, you may have a catecholamines test done to see what hormones are driving you most.
By reading a lot about abuse and it´s long-term-consequences, you become your own best therapist.
"But if I could stop those PTSD symptoms, surely my body would it improve?"
As you may have read there are many issues involved.
On the Psychological side; are you able to talk or write about your past experience?
Not that it presents the perfect solution, but hiding negative experience drives the whole body. Your Amygdala (our black box) is always reflecting, comparing and warning. That drives up the hormone levels.
On the hormonal part, you may have a catecholamines test done to see what hormones are driving you most.
By reading a lot about abuse and it´s long-term-consequences, you become your own best therapist.
nerd
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@Oliver3 @SWAlexander Since we're getting a bit off-topic here, I created a new post with a poll here.
SWAlexander
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Very good. Thanks.
Thanks for the kind reply. I've done a hell of a lot of therapy. I kinda know the roots. Part of what drives the catecholamines is allergy, mcas, whatever because I've really addressed the early life stuff best I can.
That's why addressing the parasympathetic with as many tools as possible, like you say, will help.
Hi......I did not have an easy childhood, adolescence and it wasn't until I was in my 20's that I felt safe and secure.
I must say, however, that reading about the damage that could have been done isn't something that I can do. It leaves me feeling out of control and even more concerned for the damage done to my younger brothers & sisters (and yes, I tried and actually did help them, but their lives were ruined). For some of us, this type of research takes away our ability to handle what occurred.
I do wish my younger brothers and sisters could have been helped, but such things weren't available at that time. There were good reasons for what occurred, mental illness being one of the biggest and just a whole string of problems that led from one to the other to the next. In many respects being the oldest saved me during the worst of those times. There are times when that is hard to live with...that knowledge.
Thanks for bringing childhood abuse to the fore again. I myself worked as a volunteer with abused children for many years and, surprisingly, often there was no abuse present in the lives of the parents of these children. Most either didn't or wouldn't care for their children. Too self-centered to care. Interesting subject. Yours, Lenora.
I must say, however, that reading about the damage that could have been done isn't something that I can do. It leaves me feeling out of control and even more concerned for the damage done to my younger brothers & sisters (and yes, I tried and actually did help them, but their lives were ruined). For some of us, this type of research takes away our ability to handle what occurred.
I do wish my younger brothers and sisters could have been helped, but such things weren't available at that time. There were good reasons for what occurred, mental illness being one of the biggest and just a whole string of problems that led from one to the other to the next. In many respects being the oldest saved me during the worst of those times. There are times when that is hard to live with...that knowledge.
Thanks for bringing childhood abuse to the fore again. I myself worked as a volunteer with abused children for many years and, surprisingly, often there was no abuse present in the lives of the parents of these children. Most either didn't or wouldn't care for their children. Too self-centered to care. Interesting subject. Yours, Lenora.
Surely PTSD and parasympathetic activity are intimately correlated. Many Iraq veterans have travelled to South America to use psychedelics to treat PTSD. That in turn stops the sympathetic dominance
wabi-sabi
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Yes, I just wonder what exactly is going on in the brain.
Not sure this is the right place to post on this but had to do a neccesary meeting today.
My pots went into over drive.felt so poorly.
Ate a lot to compensate but also took 3 5 mg diaezepam.
My pots stopped, my ability to walk down the streets was stabilised.
I'm in a state of pem at the moment so had no choice but to take the diaezepam. It made me feel like 80 percent better.
I know Ron has found this..god I wish we could mainline that feeling everyday
My pots went into over drive.felt so poorly.
Ate a lot to compensate but also took 3 5 mg diaezepam.
My pots stopped, my ability to walk down the streets was stabilised.
I'm in a state of pem at the moment so had no choice but to take the diaezepam. It made me feel like 80 percent better.
I know Ron has found this..god I wish we could mainline that feeling everyday
SlamDancin
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@Oliver3 Benzos are amazing but just be careful you might end up in rehab like I did. No more benzos for me
what makes this even worse is how seeking help or a diagnosis with me-cfs is in of itself often a traumatic experience...
from: https://www.eurekalert.org/news-releases/1074887
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“When a rheumatologist dismissed me I was already suicidal, this just threw me over the edge."
I had the same experience. I'd driven 100 km to see that specialist, and he dismissed my problems. I told him that I might go home and end my life. He just said "Oh, you really shouldn't do that. Bye." The drive back gave me time to think of something else to try, so I passed that suicide point. I had a similar experience before, and on the drive back I asked myself why iodine had given me temporary remission, while T4 and T3 didn't, so I investigated and found T2, which gave me something else to try.
I do wonder how many PWME committed suicide from doctor's responses (or lack thereof).
I had the same experience. I'd driven 100 km to see that specialist, and he dismissed my problems. I told him that I might go home and end my life. He just said "Oh, you really shouldn't do that. Bye." The drive back gave me time to think of something else to try, so I passed that suicide point. I had a similar experience before, and on the drive back I asked myself why iodine had given me temporary remission, while T4 and T3 didn't, so I investigated and found T2, which gave me something else to try.
I do wonder how many PWME committed suicide from doctor's responses (or lack thereof).
SWAlexander
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Yes, bad1080—traumatic experiences can have lifelong consequences. That’s why I’m currently taking a break from re-writing my book. The subject matter is incredibly toxic, and I need a clear, analytical mind to unpack and articulate how early abuse imprints have shaped my adult life—including the impacts on my immune system and gene methylation.
I’ve been re-reading the brain-busting Determined by Robert Sapolsky and The Psychopath Inside by James Fallon. I’m genuinely glad I kept all my brain MRIs—they serve as proof that, despite the trauma, I didn’t become a psychopath. Unfortunately, I can’t say the same for my brothers—permanently wired on adrenaline and constantly chasing dopamine highs, often getting into brawls. One died of ALS at 64, the second passed three years ago from muscle weakness and acute pericarditis, and the youngest continues to struggle with severe physical and organ-related illnesses, all while manipulating and exploiting anyone who gets too close.
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thanks for the recommendations i will look them up!
another great resource is Dr. Gabor Maté: https://drgabormate.com
lots of books and lots of interviews on youtube
SWAlexander
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Thank you. I'm familiar with Maté's videos. Robert Sapolsky and James Fallon offer compelling evidence that can take anyone ready for it beyond traditional psychology.
it takes me forever to go to sleep (even with breathing exercise) and then when i wake up it takes me forever again until i am fully awake. i think this might be because shifting between the parasympathetic and the sympathetic nervous system is inhibited. and when i take something for one state (like taurine for sleep), it helps getting into the parasympathetic state but getting into the sympathetic state (waking up) takes even longer (it feels like i have to work my way out of a swamp in the morning). so it helps one side but makes the other one even worse.
does anybody know what could help switching from one state to the other (ideally without affecting either side negatively)?
edit: found this on r/cfs:
does anybody know what could help switching from one state to the other (ideally without affecting either side negatively)?
edit: found this on r/cfs:
i have never tried ashwaganda but reading about its side-effects makes me think it might be hard on the digestive tract
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