dysautonomia

  1. V

    What are symptoms of autoimmune encephalitis?

    I have a vague knowledge of it and have seen various posts scattered, so was wondering if those who have been through it can say some more about how it presented in them. Also interested in whether there is any connection to that and, for lake of a better term, (new onset) "neuropsychiatric" (I...
  2. Pyrrhus

    Endothelial Dysfunction in ME

    I thought I'd start a thread to summarize discussions about the different types of endothelial dysfunction that might be found in ME. Please feel free to add to this thread as needed. What is "Endothelial Dysfunction"? Blood vessels are enclosed by a layer of cells called endothelial cells...
  3. Pyrrhus

    Insights from Invasive Cardiopulmonary Exercise Testing of Patients with ME/CFS (Joseph et al., 2021)

    A new publication by the team of Phillip Joseph, Anne Oaklander, and David Systrom, which I personally find exciting. Insights from Invasive Cardiopulmonary Exercise Testing of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Joseph et al., 2021)...
  4. K

    Dysautonomia worse treating B12

    Hello all, It appears we finally have the right approach and my MMA levels are coming down. I have already upped my potassium. My dysautonomia seems to be getting worse. Anyone else experience worsening while treating? I suspect it’s the cells being created and nerves healing... at least I hope...
  5. ChookityPop

    Anyone resolved blood pooling?

    This is my biggest problem. If I can fix this, I think that I would be in much better shape. I have Pectus Excavatum which can mimic POTS and I think I will have to do the NUSS procedure in the hopes it can better my symptoms. I use compression, drink fluid, salt and Mestinon. I also have...
  6. F

    A Unifying Hypothesis of the Pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS),,,,,

    A Unifying Hypothesis of the Pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Recognitions from the finding of autoantibodies against ß2-adrenergic receptors Has anybody read this? I thought we tended more to low blood pressure than high (please correct me?). I...
  7. Pyrrhus

    Is SIBO caused by dysautonomic gastrointestinal motility?

    Small Intestinal Bacterial Overgrowth (SIBO) is a common diagnosis these days in ME/CFS patients. The most common reported symptoms are gas, bloating, and constipation, although there may be others. Diagnosis is often based on a breath test such as the lactulose breath test. Some people report...
  8. Murph

    Circadian rhythm abnormalities and autonomic dysfunction in patients with CFS/ME

    PLoS One. 2018 Jun 6;13(6):e0198106. doi: 10.1371/journal.pone.0198106. eCollection 2018. Circadian rhythm abnormalities and autonomic dysfunction in patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. Cambras T1, Castro-Marrero J2, Zaragoza MC2,3, Díez-Noguera A1, Alegre J2...