dysautonomia

A 54 yo nurse from San Diego describes how her previously fit-and-healthy life has been impacted by POTS, following COVID-19. The long time to diagnosis is discussed, along with helpful treatments (Ivabradine), as well as lifestyle modifications. In particular: fluid loading extra salt small...

https://openletteropenmedicinefoundation.com/long-covid-and-environmental-toxins-lake-tahoe-2-0/ Is the CDC and general scientific community retreading ground from the Lake Tahoe outbreak that caused the invention of the CFS syndrome /category of illness ? Are they reinventing the wheel, so to...

I have a vague knowledge of it and have seen various posts scattered, so was wondering if those who have been through it can say some more about how it presented in them. Also interested in whether there is any connection to that and, for lake of a better term, (new onset) "neuropsychiatric" (I...

I thought I'd start a thread to summarize discussions about the different types of endothelial dysfunction that might be found in ME. Please feel free to add to this thread as needed. What is "Endothelial Dysfunction"? Blood vessels are enclosed by a layer of cells called endothelial cells...

A new publication by the team of Phillip Joseph, Anne Oaklander, and David Systrom, which I personally find exciting. Insights from Invasive Cardiopulmonary Exercise Testing of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Joseph et al., 2021)...

Does anyone get bad exaggerated hippus where your pupils go back and forth from constricting and dilating? This is regardless of light hitting them. The pupils will keep oscillating back and forth. I swear I can even feel it do this and my vision will get shaky/jerky when its bad. I don't know...

If I wake up- have black coffee only, I can feel almost normal until I get hungry enough to eat. No matter what I eat- 45 mins later or so I come down with brain fog, lethargy, that distinct feeling you’ve been poisoned. infant, fasting with moderate exercise can actually fix me for a few...

Hello all, It appears we finally have the right approach and my MMA levels are coming down. I have already upped my potassium. My dysautonomia seems to be getting worse. Anyone else experience worsening while treating? I suspect it’s the cells being created and nerves healing... at least I hope...

This is my biggest problem. If I can fix this, I think that I would be in much better shape. I have Pectus Excavatum which can mimic POTS and I think I will have to do the NUSS procedure in the hopes it can better my symptoms. I use compression, drink fluid, salt and Mestinon. I also have...

A Unifying Hypothesis of the Pathophysiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Recognitions from the finding of autoantibodies against ß2-adrenergic receptors Has anybody read this? I thought we tended more to low blood pressure than high (please correct me?). I...

Small Intestinal Bacterial Overgrowth (SIBO) is a common diagnosis these days in ME/CFS patients. The most common reported symptoms are gas, bloating, and constipation, although there may be others. Diagnosis is often based on a breath test such as the lactulose breath test. Some people report...

I’ve suffered from shortness of breath for nine months. Probably the worst symptom I deal with. I’m asthmatic but my asthma was worse as a kid. It’s almost nonexistent now. What I experience now is different. I don’t wheeze. I just don’t feel like I’m inhaling oxygen most of the day. But my...

Evaluation of the finger wrinkling test: a pilot study S. van Barneveld,1,3 J. van der Palen,2,5 and M. J. A. M. van Putten1,4 2010 Abstract Purpose Tilt table testing mainly evaluates the systemic cardiovascular part of the autonomic nervous system, while it is assumed that the finger...

PLoS One. 2018 Jun 6;13(6):e0198106. doi: 10.1371/journal.pone.0198106. eCollection 2018. Circadian rhythm abnormalities and autonomic dysfunction in patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. Cambras T1, Castro-Marrero J2, Zaragoza MC2,3, Díez-Noguera A1, Alegre J2...

This is the second time that I've experienced a reaction to local anaesthetic that was administered by my dentist. I become drowsy during procedure and afterwards (yesterday) I developed light headedness, severe nausea (still lingering), shakes and tremors. Vision blurred. The nurse gave me...

have had this symptom for awhile, but lately it is getting much worse - almost feels like I am trying to breathe carbon monoxide instead of oxygen anyway, just wondering if anyone has any good ways of dealing with this.....I have tried laying down and relaxing, and I have an air purifier in...