I'm curious if any of you has the same manifestation of acute crashes as I have. Because in my case, the sequence is relatively consistent among all the incidents.
Yesterday, I had another lukewarm bath. These baths happen to change something so that I wake up early and feel ready for the day, no typical hangover feeling and no typical burning throat. So I stood up early because I felt hyperactive in the bed. The whole day went smoothly until 6 pm or so when I suddenly crashed.
I've had these crashes since childhood. First, I have extreme nausea, the feeling that I'm about to vomit any moment, and stool urgency. But it's not real, just my nervous system sending false signals. So it's important that I don't give in to these feelings because it makes things even worse when I rush to the toilet. In that case, I lose consciousness after feeling that I'm about to die - probably severe anxiety despite my consciousness telling me that this is just another of many incidents like these. So I've learned to lay down instead asap. At least, it seems to keep me conscious this way.
Soon after this, my body feels like I'm freezing. Sometimes, it can be interrupted by short moments where it inverses and I feel like my whole skin is burning. But it's mostly shivering without fever. I also have tachycardia at first. Eventually, this fades when I keep laying. What I also noticed today was a very strange taste in my mouth and the back of my throat, before the crash and still ongoing. Soon after the crash, I also feel very thirsty, this can last longer. It's a fake thirst.
Does anyone have the same or a similar manifestation of their crashes?
I was in a hospital three times because of this. The third time, they at least checked my blood. They found elevated D-Dimers. I wonder if this is sort of a thrombotic issue or hemolytic anemia that causes a serotonin syndrome like Covid-19 does. I looked through the range of nausea medications because that's my earliest symptom. You can find anti-cholinergic, anti-muscarinergic, anti-histaminic, and and anti-serotonic medications among them. Each of these mechanisms can be linked to the pathophysiology of ME. Any guesses which might the best explanation for a mechanism that causes stomach-unrelated nausea, gut-unrelated stool urgency, taste changes and thirst, and temperature missense or dysautonomia?
Another typical explanation would be the vagus nerve. People with acute life-threatening conditions can experience the same early signs, like for a heart attack. As a contrast, however, I've already made the experience of renal colics, which I would describe as the worst pain I have ever endured - not even opioids would help against it. Obviously, this triggers the vagus nerve as well. But not even this was comparable. The nausea was there, but not as dominant. No anxiety or shivering either. So if it is the vagus nerve, what activates it in such an overt manner?
Yesterday, I had another lukewarm bath. These baths happen to change something so that I wake up early and feel ready for the day, no typical hangover feeling and no typical burning throat. So I stood up early because I felt hyperactive in the bed. The whole day went smoothly until 6 pm or so when I suddenly crashed.
I've had these crashes since childhood. First, I have extreme nausea, the feeling that I'm about to vomit any moment, and stool urgency. But it's not real, just my nervous system sending false signals. So it's important that I don't give in to these feelings because it makes things even worse when I rush to the toilet. In that case, I lose consciousness after feeling that I'm about to die - probably severe anxiety despite my consciousness telling me that this is just another of many incidents like these. So I've learned to lay down instead asap. At least, it seems to keep me conscious this way.
Soon after this, my body feels like I'm freezing. Sometimes, it can be interrupted by short moments where it inverses and I feel like my whole skin is burning. But it's mostly shivering without fever. I also have tachycardia at first. Eventually, this fades when I keep laying. What I also noticed today was a very strange taste in my mouth and the back of my throat, before the crash and still ongoing. Soon after the crash, I also feel very thirsty, this can last longer. It's a fake thirst.
Does anyone have the same or a similar manifestation of their crashes?
I was in a hospital three times because of this. The third time, they at least checked my blood. They found elevated D-Dimers. I wonder if this is sort of a thrombotic issue or hemolytic anemia that causes a serotonin syndrome like Covid-19 does. I looked through the range of nausea medications because that's my earliest symptom. You can find anti-cholinergic, anti-muscarinergic, anti-histaminic, and and anti-serotonic medications among them. Each of these mechanisms can be linked to the pathophysiology of ME. Any guesses which might the best explanation for a mechanism that causes stomach-unrelated nausea, gut-unrelated stool urgency, taste changes and thirst, and temperature missense or dysautonomia?
Another typical explanation would be the vagus nerve. People with acute life-threatening conditions can experience the same early signs, like for a heart attack. As a contrast, however, I've already made the experience of renal colics, which I would describe as the worst pain I have ever endured - not even opioids would help against it. Obviously, this triggers the vagus nerve as well. But not even this was comparable. The nausea was there, but not as dominant. No anxiety or shivering either. So if it is the vagus nerve, what activates it in such an overt manner?
Last edited:
