Esther12
Senior Member
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I'm sure you know more about the details than I, but I'm still struggling to believe they could really spend that much money on PACE without collecting the sort of data that would be of interest to those sceptical about GET and CBT. If I were them, I would want to desig trials that had a good chance of proving my ideas wrong, or else over-coming the objections of those who disagree with me. Not many CFS researchers seem very good at this.
Ahh - I was so young and innocent then.
I still think I was pretty much bang on with this:
That's just such a corrupt approach to research, but because there's being such a history of making misleading claims in order to help patients remedy their destructive thought patterns, it's difficult to give them the benefit of the doubt.
I think that the most damaging thing the GET/CBT lobby have done to CFS patients is introduced the notion that it's acceptable for medical professionals to mislead patients for their own good. It's destroyed our ability to trust our doctors or researchers and left us endlessly teetering on the edge of conspiracy theories. You're probably right to not spend much time thinking about it.