Please sign the MEA's petition asking NICE to review the guidelines for ME (CLOSING MONDAY JULY 24)

[Countrygirl]

Perhaps someone should remind Professor David Haslam of his statement here:

 

[Valentijn]

It's now up to 4,670 signatures. 330 more signatures are needed to hit the big 5K.

 

[Barry53]

 

[Barry53]

 

[Countrygirl]

5 000 !!!!!!

 

[dangermouse]

 

[Barry53]

Perhaps someone should remind Professor David Haslam of his statement here:

Practising what they preach ... that would be good wouldn't it. Would even help people believe they really mean it when they claim "National Institute for Health and Care Excellence".

 

[charles shepherd]

Just back from London where we had a really excellent meeting at the House of Lords with Dr Diane O'Leary - who is an expert in medical ethics.

The MEA petition is now heading towards 6,000 signatures in less than 48 hours!

CS

 

[Countrygirl]

6000!!!!!!!!

 

[MeSci]

6000!!!!!!!!

and in just over 2 hrs, another 427!

 

[AndyPR]

@charles shepherd , why not leave this petition open, instead of closing it after 7 days? I can understand that you have a limited time frame to get the MEA's response to the NICE guidelines in but you could easily take a screenshot of the petition at a particular time of your choosing, while leaving the petition to run and continue to amass signatures so as to strengthen any argument for changing the guidelines at a future point in time.

 

[DoggerFisher]

Signed and shared with the Well-niverse (they should notice it's my first post on FB for a couple of years!!)

 

[charles shepherd]

@charles shepherd , why not leave this petition open, instead of closing it after 7 days? I can understand that you have a limited time frame to get the MEA's response to the NICE guidelines in but you could easily take a screenshot of the petition at a particular time of your choosing, while leaving the petition to run and continue to amass signatures so as to strengthen any argument for changing the guidelines at a future point in time.

This is being discussed now that the deadline for stakeholder consultation responses has been extended

I see that we are now heading for 7,000 signatures - in only three days!

This must be some sort of record for an ME/CFS related petition….

CS

 

[Solstice]

This is being discussed now that the deadline for stakeholder consultation responses has been extended

I see that we are now heading for 7,000 signatures - in only three days!

This must be some sort of record for an ME/CFS related petition….

CS

Maybe people are getting more aware of our harms and where it comes from?

 

[charles shepherd]

Now up to 6380 signatures

Feedback indicates that it is now ipad friendly to sign - but it may be difficult to add comments on an iPad…..

CS

 

[arewenearlythereyet]

just a quick correction

6830....Oh now 6840

 

[AndyPR]

I see that we are now heading for 7,000 signatures - in only three days!

This must be some sort of record for an ME/CFS related petition….

All due respect, maybe in terms of progress in just 3 days, but you need to go some to beat MEActions 10k+ on, I think, the call to retract PACE, and the 30K+ that Mary Gelpi's call to the NIH to increase funding got.

 

[charles shepherd]

All due respect, maybe in terms of progress in just 3 days, but you need to go some to beat MEActions 10k+ on, I think, the call to retract PACE, and the 30K+ that Mary Gelpi's call to the NIH to increase funding got.

Yes, but I was referring to 7000 (we are almost there!) in three days….

Looks as though we should reach 10,000 at some point

30,000 looks rather ambitious!

CS

Just seen that we have broken the 7000 barrier in less than 3 days...

 

[dangermouse]

YAY

 

[MEMum]

7163!