Open letter to the OMF--help save us canaries

[frozenborderline]

https://twitter.com/i/web/status/1458114501803446273

Michael Van elzakker talking about lack of omf support for his promising research. Fund Michael van elzakker and polybio instead of omf if you are able to give. He's younger and more responsive to concerns , its futile maybe , to think omf would listen to patient concerns. Stuck in their ways

 

[5vforest]

I'm unclear as to whether PolyBio actually wants patient donations or not. Do they have the capability to run more studies if they were to receive more money from patients? I don't know. MvE has said before that he prefers to get grant money.

 

[frozenborderline]

I'm unclear as to whether PolyBio actually wants patient donations or not. Do they have the capability to run more studies if they were to receive more money from patients? I don't know. MvE has said before that he prefers to get grant money.

Its not in the least unclear to me, he just says to a lot of people not to donate their last few bucks or disability check. Maybe that sends unclear message , but polybio most certainly needs funding from all sources

 

[frozenborderline]

The website is moving up in search results finally

 

[frozenborderline]

I'm unclear as to whether PolyBio actually wants patient donations or not. Do they have the capability to run more studies if they were to receive more money from patients? I don't know. MvE has said before that he prefers to get grant money.

They need money. They dont want patients to spend their poverty $$ /disability checks on them, but that's for moral reasons. If one is going to give to one of the two orgs I think it would go further with polybio