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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. frozenborderline

    Open letter to the Open Medicine foundation

    Just the scant beginnings of a long-term advocacy project I'm working on Re environmental factors in this illness and having the omf address them. https://openletteropenmedicinefoundation.com
  2. frozenborderline

    Open letter to the OMF--help save us canaries

    Made this video which id like to get to people at the Open Medicine Foundation and maybe other researchers as well. As a side note, I find the thumbnail deeply unflattering and want tech support to know if I can edit the thumbnail from mobile Please watch and share as widely as possible if...
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