My MRI images

pattismith

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@sb4
I found information on the clivo-axial angle (also called cranio-vertebral angle).

In this blog, the normal angle is 150-180 degres

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and we have a very informative article by Henderson that says

"There is growing recognition of the kyphotic clivo-axial angle (CXA) as an index of risk of brainstem deformity and craniocervical instability. This review of literature and prospective pilot study is the first to address the potential correlation between correction of the pathological CXA and postoperative clinical outcome. The CXA is a useful sentinel to alert the radiologist and surgeon to the possibility of brainstem deformity or instability. "
...
"All clinical metrics showed statistically significant improvement. Mean CXA was normalized from 135.8° to 163.7°. Correction of abnormal CXA correlated with statistically significant clinical improvement in this cohort of patients. The study supports the thesis that the CXA maybe an important metric for predicting the risk of brainstem and upper spinal cord deformation. Further study is feasible and warranted."
 

pattismith

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@pattismith Yeah Prof Smith puts it at 145.3. He noted it was out of normal range however nothing more.
In fact, reading your measurements, I thought 145 was fine because the consensus says that pathological in under 135. But Henderson seems not to follow this strict rule.
It is strange to notice that your CXA improves in flexion, which is not expected, did you check that?
In this article you can read that some atlanto-occipital horizontal posterior instability resolves in flexion, so I wonder if this could be your case.
edit:
According to traumatology articles, you need a CT multiplanar reconstruction of atlanto occipital joint to access instability inthat joint, I wonder why the EDS-fusion specialists doesn't use it...
 

sb4

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In fact, reading your measurements, I thought 145 was fine because the consensus says that pathological in under 135. But Henderson seems not to follow this strict rule.
It is strange to notice that your CXA improves in flexion, which is not expected, did you check that?
In this article you can read that some atlanto-occipital horizontal posterior instability resolves in flexion, so I wonder if this could be your case.
edit:
According to traumatology articles, you need a CT multiplanar reconstruction of atlanto occipital joint to access instability inthat joint, I wonder why the EDS-fusion specialists doesn't use it...
Yeah, I can sometimes feel better (neck discomfort lessening) in flexion briefly but cant hold it. I figure if I properly sort my posture I will be able to hold my head in the correct position without forward head posture. This will take time though as I think my gastroparesis and thus stomach bloating is pulling the rest of my spine out of position.

I do think the measurement being borderline could be significant combined with the bend that is visible in the spinal cord, but IDK.

Did you get a report with your imaging?
 

pattismith

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Did you get a report with your imaging?
yes, radiologist said everything is fine, and spine surgeon said "why are you coming to me, neurosurgeons are not supposed to deal with painful neck, you should go to a rheumatologist"...
So I told him I saw the last one two years ago for neck pain, he did an xray and said I had arthrosis and that there was nothing to do...
The spine surgeon answered that there might be a lack in the medecine system, because nobody wants to look for neck pain causes...That's it. It took him 5 mn to have a look at my MRI and 10 mn to dictate his report.
I didn't consider talking about my other symptoms, I guessed it was useless...:rolleyes:
He admitted that I have two hernias, but he said "there is room all around the cord", so it's fine.

My neck is deviated to the left, so he agree that something should be done, and he refered me to see a physio...
 

pattismith

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These pictures are from an article about a patient suffering myelopathy +nuckal pain and posterior atlanto occipital subluxation. (Surgical Treatment for Atlanto-Occipital Subluxation due to Destructive Spondyloarthropathy in a Patient Undergoing Long-Term Hemodialysis)
The surgery they performed is really incredible...
Edit, sorry the content and links are protected, I can't put them here...
Yes I did it

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Are there effective medications for the spine? I have osteochondrosis of the cervical spine, and I am looking for additional help to my spine in addition to exercises and swimming in the pool.