Movies and Documentaries about ME

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Mouse girl

Senior Member
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588
Pyrrhus said:
Unfortunately, the full-length documentary "I Remember Me", about the famous 1984 Incline Village outbreak, appears to no longer be available, but a trailer is available here:
https://mecfssa.org.au/resources/i-remember-m-e

Related discussions:
https://forums.phoenixrising.me/threads/i-remember-me-thoughts-and-curiosities.46054/
https://forums.phoenixrising.me/threads/i-remember-me-stephen-paganetti.3829/
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You can buy a VHS tape or DVD on amazon. I have both. I bought the tape oh, decades ago now, i guess or close to that and then got the DVD. It was just so validating as this was before i knew anyone else with the illness except a few strangers i met at some in person support groups the few times i could drive that far to make it. I heard that in the end, she found out she had Lyme and was doing much better, she was able to work again but hadn't seen much of her that i could find after she produced her second film.
 
Pyrrhus

Pyrrhus

Senior Member
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The Most Underfunded Disease at the NIH
by Winston Blick of "ME/CFS Quotes"

If you compare funding and disease burden data across all diseases at the NIH for which this data is available, one disease stands out. It's ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), a condition that afflicts 1–2.5 million Americans. Those numbers may rise drastically as a result of long COVID, which in many cases closely resembles ME/CFS.

For more resources, doctors and patients can refer to the U.S. ME/CFS Clinician Coalition: https://mecfscliniciancoalition.org
[...]
Special thanks to Andrew Vickers, who composed the soundtrack for this video. Arthur Mirin, Mary Dimmock, and Leonard Jason conducted the research into ME/CFS funding vs. disease burden that is referred to throughout this video. Read their latest research update: https://pubmed.ncbi.nlm.nih.gov/32568148
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For more informative content, follow ME/CFS Quotes (@mecfsquotes) on Twitter, Instagram, and Facebook.
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lenora

Senior Member
Messages
5,021
Hi @Mouse girl....how are you? I thought perhaps you had left the Forum, but I'm glad to see that you're still here. Here's hoping that life is going better for you this year. Yours, Lenora.
 
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Osaca

Senior Member
Messages
344
I could be wrong, but I believe Unrest has been free to watch on YouTube for roughly a month and should stay that way, at least in the mean time.
 
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