I Remember Me/Stephen Paganetti

LaurelB

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I wasn't sure where to post this question. I have long wondered what ever happened to the teenage boy in the ME/CFS Documentary I Remember Me. I believe his name was Stephen Paganetti. He was the one who was bedbound and fed with a feeding tube, and had to go to his HS graduation in a gurney.

It's been about a decade now since that documentary was made, and I wonder how this boy's health progressed. Did he improve? Get worse? Remain the same? I've been unable to find any information.

I did see a post on another message board long ago saying someone heard he'd gotten better and was now able to travel, etc. But I never was able to confirm this.

If he did get better, I'd like to know how. :)

Anyone have any info? Thank you.

Laurel
 

Carrigon

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This is the old address to write to him, but I don't know if it's still any good. It was published in alot of CFIDS places, so it's safe to post this address.
Stephen Paganetti, Jr.
P.O.Box 145
Durham, CT 06422-0145

I think he's still in Durham. There was an article about his grandmother passing away in 2007 and his name was mentioned, but nothing else.
 

LaurelB

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Thanks, Carrigon. I may just do that and send him a note. If so, I'll let everyone know if I hear back.

He seems to have completely disappeared.
 

LaurelB

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Just an update -- I actually wrote him at the address above back in May. I never got a reply. The letter also was not returned to me, so I assume he got it. Would really love to know how he's doing.
 

LaurelW

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Thanks for bringing this up, Laurel. I too have been wondering what happened to him. I'm hoping that he got better and is living a normal life.
 

LaurelB

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Hi Julia -- I tried multiple avenues but was not able to contact him. Or, at least, I never got a reply. :(
 

SB_1108

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I just watched I Remember me for the second time. I watched it initially when I first developed ME and now again almost a decade later. It's hard to see how little has changed. I was wondering if there had been any updates from Stephen Paganetti or Kim Snyder?
 
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Just watched the documentary as well.

Havent done a proper search but have found this so far.

"Probably the most amazing partial recovery story I've encountered is that of Stephen Paganetti, the bedridden teenager in the film, I REMEMBER ME, who had to be wheeled to his graduation on a gurney. He is now walking again and is travelling to other states, according to the Connecticut CFIDS Association. "

http://forums.prohealth.com/forums/index.php?threads/recovery-from-cfs-50-personal-stories.167212/