Movies and Documentaries about ME

Pyrrhus

Senior Member
Messages
4,032
Likes
12,328
Location
U.S., Earth
There are some brave filmmakers trying to make films having to do with ME...


Here is one example of a film called "Wild Horses":
https://forums.phoenixrising.me/thr...is-short-listed-for-prize-at-cannes-fi.50720/
Wild Horses - a new film about ME/CFS has been short listed for a prize at this year's Cannes Film Festival


And here is one unfinished film called "Black Box: Listen":


And here is one finished short film called "This is ME":
https://purefilms.tv/this-is-me.html
 
Last edited:

nyanko_the_sane

Because everyday is Caturday...
Messages
655
Likes
2,148
Yes It Costs to Stand

El colectivo Madres por el 12 de mayo presentan este proyecto que tiene como objeto visibilizar enfermedades como la Encefalomielitis mialgica, Fibromialgia, Sensibilidad química Múltiple y Electrohipersensibilidad, enfermedades poco conocidas pero devastadoras para aquellos y aquellas que las sufren.

The group Mothers for May 12 present this project that aims to make visible diseases such as myalgic Encephalomyelitis, Fibromyalgia, Multiple Chemical Sensitivity and Electrohypersensitivity, little known but devastating diseases for those who suffer them.

Con las voces de Nicolás Hernández (El Hombre Garabato), Amparo Sánchez, José Antonio García (091) y Lichis (La Cabra Mecánica), “Si Cuesta Estar De Pie” se convierte en todo un himno que reclama la atención pública de estas enfermedades.

With the voices of Nicolás Hernández (El Hombre Garabato), Amparo Sánchez, José Antonio García (091) and Lichis (La Cabra Mecánica), “Yes It Costs to Stand” becomes a hymn that demands public attention for these diseases .

Esta canción quiere ser la voz de todos los afectados de Encefalomielitis Mialgica, Fibromialgia, Sensibilidad química Múltiple y Electrohipersensibilidad, enfermedades sistémicas altamente discapacitantes y cuyas consecuencias son devastadoras en grados severos. Deseamos tener una vida digna y tener la fuerza física para reivindicar lo que nos corresponde: derecho a la salud, investigación y tratamiento.

This song wants to be the voice of all those affected by Myalgic Encephalomyelitis, Fibromyalgia, Multiple Chemical Sensitivity and Electrohypersensitivity, highly disabling systemic diseases whose consequences are devastating in severe degrees. We want to have a dignified life and have the physical strength to claim what belongs to us: the right to health, research and treatment.
 
Last edited:

Pyrrhus

Senior Member
Messages
4,032
Likes
12,328
Location
U.S., Earth
ME/CFS South Australia has compiled a great list of documentaries on ME:
https://mecfssa.org.au/resources/list-of-documentaries-on-me-cfs

MEcfs South Australia said:
List of Documentaries on ME/CFS

Making the invisible visible – pulling back the curtain on the lived experience of ME/CFS.

2020 - Dialogues for a neglected illness: Patients' Accounts of Symptoms - UK
A collection of eight videos from the UK, on different aspects of people's experiences with ME/CFS.
2020 - Hope to our Hands: The Hidden Story of ME/CFS in Japan
A moving documentary of those in Japan living with ME/CFS who are struggling to receive acknowledgement, medical care and support.
2020 - LEFT OUT - Norwegian with English subtitles
This documentary follows the hopes of people in the Norwegian ME/CFS community as they await the outcome of an exciting new study.
2017 - Unrest - US
Award-winning documentary, Unrest, is a personal journey from patient to storyteller that lifts the veil on the hidden world of ME/CFS and documents the beginnings of the global #MillionsMissing movement.
2017 - Jen Brea's TED Talk - US
What happens when you have a disease doctors can't diagnose?
2016 - Forgotten Plague - US
Ryan Prior, now a CNN journalist, films a documentary that explores the experiences of himself and others in a medical system that has failed people with ME/CFS; and speaks with the clinicians and researchers who are working to change that.
2015 - The Last Great Medical Cover Up - UK
A UK documentary about the challenges faced by people living with ME, explored through interviews with six people.
2015 - Invisible Illness- Stories of Chronic Fatigue Syndrome - US
A short documentary from the US about three people with ME/CFS, including Whitney Dafoe, whose father, Ron Davis, is credited with mapping the human genome and is now leading major research into ME/CFS.
2015 - Voices from the Shadows - UK
A UK documentary highlighting the stories of five ME patients and their carers, with input from medical experts in ME, Dr Nigel Speight and Prof Malcolm Hooper, and ME researcher, Prof Leonard Jason.
2000 - I Remember M.E. - US
The trailer highlights the 1984 outbreak of ME/CFS in Incline Village, US, after a patient returned from China with a flu-like illness.
 
Messages
2,819
Likes
6,249
Location
Canada
There was a character with EMF sensitivity on "Better Call Saul"... but he ended up being just a lunatic with psychosomatic delusions. Disappointing. Strangely though it was wasn't till the end of the character arc that it was made clear, as though some of the writers were ambiguous about whether it might be a real condition after all. Melodramatic psychopathy makes for better ratings than boring old chronic illness either way, so it's hard to tell what the original intentions of the writers may have been.
 

Pyrrhus

Senior Member
Messages
4,032
Likes
12,328
Location
U.S., Earth
Yeah, the illness that Julianne Moore's character has in the movie "Safe" is Multiple Chemical Sensitivity, which is a common symptom of ME.

But you can also suffer from Multiple Chemical Sensitivity (MCS) separate from ME. In this context, MCS is considered a type of Environmental Illness (EI). Another type of EI is called ElectroHyperSensitivity (EHS).

For an excellent discussion of MCS, see the MEpedia page:
https://me-pedia.org/wiki/MCS
 
Messages
10,164
Likes
24,566
But you can also suffer from Multiple Chemical Sensitivity (MCS) separate from ME. In this context, MCS is considered a type of Environmental Illness (EI). Another type of EI is called ElectroHyperSensitivity (EHS).
I was just telling someone how I don't tend to read newspapers or magazines. One reason (besides the visual issues) is the smell. I can smell the inks. Things outgassing- really really sensitive to stinks.
 

bensmith

Senior Member
Messages
1,531
Likes
3,359
@Jennifer J yes i understand this, that time has passed. But it feels like home to me in other ways. Self doubt, inability to find adequate care, desperation, crazy folks, family abuse, life destruction, isolation. Thats us!
 

Pyrrhus

Senior Member
Messages
4,032
Likes
12,328
Location
U.S., Earth
There is a full-length documentary "I Remember M.E.", about the famous 1984 Incline Village outbreak, released in 2000.

Here's a trailer:
https://mecfssa.org.au/resources/i-remember-m-e

And here's the full-length version:
https://drive.google.com/file/d/1AnScOOjgWHljugpydwUfyImNWL5jh8Dg/view

Related discussions:
https://forums.phoenixrising.me/threads/i-remember-me-thoughts-and-curiosities.46054/
https://forums.phoenixrising.me/threads/i-remember-me-stephen-paganetti.3829/

EDIT: found a link to the full-length version
 
Last edited: