#MillionsMissing - Round 2 - Sept 27th 2016

[AndyPR]

From the #MEAction Facebook feed;

Click to view on Facebook

 

[Seven7]

If anybody has the mail list to newspapers and tv I can send the invitation with time. We need more wide ranges coverage. Also we need people to register in tweeter just using the # will put the news in the top. If you cannot go, by posting you can help from home A LOT.

 

[Mark]

Awesome! The millions missing march on!

 

[Comet]

Woohoo!

 

[Little Bluestem]

I am not on Facebook or Twitter. Has an address for sending shoes been given? With this much lead time, I should be able to get some sent.

 

[AndyPR]

The date is all the information that has been given so far that I've seen. I'm sure @JaimeS will correct me if I'm wrong

 

[snowathlete]

pleased to see this going to the next level. I think we saw with round 1 that we can be noticed, I hope this encourages more people to get involved in one way or another.

 

[JaimeS]

@AndyPR -- That is correct, Andy. More official information is going out tomorrow on #MEAction though, so stay tuned!

 

[JaimeS]

...and by that I mean Tuesday!

The survey is taking up all my brainspace right now!

 

[JaimeS]

Here you are, everyone!

http://www.meaction.net/2016/06/21/join-the-millionsmissing-round-2/

 

[AndyPR]

Rats, just realised we are on holiday that week, any chance of rescheduling @JaimeS ???

 

[JaimeS]

You can always send shoes and write things!

 

[Sasha]

Seems to be stuff going on behind the scenes, and there was just an announcement that the Holland group has got permission to demonstrate at The Hague - the seat of the Dutch parliament.

Nice going, that group!

https://www.facebook.com/MillionsMissingHolland/?fref=nf

 

[Horizon]

I really hope this one will be massively successful.

 

[JaimeS]

The UK is set to go in MANY cities this time around -- very proud of our UK brethren!

 

[Comet]

Is there anything we can do to help advocate for doctor awareness of ME/CFS? If the CDC says we have a real illness, why is there no doctor/medical personnel training or continuing education for ME in the US (this second question is rhetorical)?

If this was the case, at least our symptoms could be documented or even, *gasp*, treated.

I have to make my best efforts to earn a living while being mostly bedbound, but maybe I can do a little to help.

 

[JaimeS]

@Comet -- I'm working on something like this, maybe you can help? PM me.

 

[Sasha]

@Comet, @JaimeS - did you guys see this?

http://solvecfs.org/meet-the-newly-formed-london-med-ed-workgroup

 

[Comet]

@Comet, @JaimeS - did you guys see this?

http://solvecfs.org/meet-the-newly-formed-london-med-ed-workgroup

Yes! I saw that late last night on Twitter. Wonderful news.

 

[Comet]

@Comet -- I'm working on something like this, maybe you can help? PM me.

Will do!