If anybody has the mail list to newspapers and tv I can send the invitation with time. We need more wide ranges coverage. Also we need people to register in tweeter just using the # will put the news in the top. If you cannot go, by posting you can help from home A LOT.
Is there anything we can do to help advocate for doctor awareness of ME/CFS? If the CDC says we have a real illness, why is there no doctor/medical personnel training or continuing education for ME in the US (this second question is rhetorical)?
If this was the case, at least our symptoms could be documented or even, *gasp*, treated.
I have to make my best efforts to earn a living while being mostly bedbound, but maybe I can do a little to help.