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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I become extremely depressed being on the protocol now for 2,5 months, especially after taking all the supplements together daily. If I space them, the suicidal feelings fade away. I felt awesome physically after 6 weeks on the protocol even though there were quite some start-up problems. Then I probably became too confident, raised the dose to daily 5 + 1mg methyl (but no adenosine yet) as well as daily 800 mcg folate.
The suicidal thoughts hit double hard especially after having s*x, horrible contrast. Also very easily angry and agressive. Scary times, I always consider how I could overdose to die as quickly as possible and at the same time I know it is a temporary reaction. It always passes, accept it, be my best friend in these moments. However partner and children don't understand at all what is going on. Very difficult to explain too.
My doctor did a blood test. Vit E was well above reference levels this time so I guess it's time to stop supplementing.
B12 raised with 600 points in about 3 months time, just with tablets.
Homocysteine was still slightly raised so still some work to do.
Absolutely, these are the worst, they make me feel psychotic. They'll have to wait!I'm getting these out of control feelings after adding adb12 and acetyl l carnitine
NAC is in the treatment protocol for Chlamydia pneumonia which I have (cpnhelp.org). My doctor gave niacin for other reasons (suspicion of Lyme, high cholesterol, energy issues, ...) but I tolerate only low doses. Here's a good explanation why:Arx- I remember Rich telling me that cystine might help with calming things down. Maybe that will help like the niacin?
Marlene- I have ran into many road blocks. It's like you plug one hole and another one opens up that needs fixed. But right now I have been working with amino acids to fix stuff. I don't take them every day but several times a week and it seems to be working. Sometimes I rotate stuff like sleeping meds: gaba/triptophan/ melatonin. Recently I was having IC issues, like every friday and it would be gone by monday. But I discovered that taking copper once a weeks take care of this problem.... why? I have no idea but it does. Keep trying different stuff, you might find the link.