Yes, we can. Millions of ME patients are unaffected by mould.
Unless you're saying ME and mould intolerance are synonymous then my point stands. Are you?
I'm saying that, while I think it's unlikely mould intolerance plays any significant role in causing the ill-health of those with ME, we cannot be certain that it is not the primary cause of ill health for those with ME.
You seem once again to be unwilling or unable to address my points. Mould avoidance does not treat ME.
I don't know what points you think I'm failing to address. Claiming to know that mould avoidance does not treat ME is not the same as presenting any evidence to show that mould avoidance dos not treat ME. What other treatments can we so confidently assert do not treat ME?
It's not about criteria.
If you're saying that ME is defined in such a way that someone who recovered following mould avoidance cannot be said to have had ME, surely it is about exactly how 'ME' is defined.
You said: but it's still a long way from her asserting that mould intollerance is ME in that way @@JohntheJack had sad she had.
You responded to my suggestion that you share your evidence with Julie with this. I thought that you were talking about Julie. Sorry if I misunderstood you.
Esther12 said:If you have the evidence needed to prove this then I'd encourage you to share it with Julie.JohntheJack said:Mould intolerance is not ME. ME is a discrete illness which is not treated by mould avoidance.
It's possible that thinking through the comparison with rituximab could also be interesting for thinking about the way in which ME is defined, and how responses to treatments can inform our understanding of who does, and does not, suffer from ME.
First, it works the other way round: if someone claims mould intolerance is ME, then they have to show how and why.
Second, part of the criteria for ME is, as I said, that the symptoms are not the result of other causes. If the symptoms are caused by mould intolerance, then an ME diagnosis is excluded.
No, because rituximab is a possible treatment. Mould intolerance is mould intolerance.
How do you determine what a possible treatments for ME, and what are treatment which, if successful, show that the patient never had ME?
I'm bewildered why anyone would want to confound mould intolerance with ME. It serves no one.
I'm a committed splitter.I think it's good to have categories for ill-health that are as small and precise as can be meaningfully managed. I just also think that it's best to try to be cautious in the claims we make about other people's health, and to try not to go beyond the evidence.