JohntheJack
Senior Member
- Messages
- 198
- Location
- Swansea, UK
Having dodgy researchers use some arguments doesn't necessarily mean that there's anything wrong with the arguments. I'm not sure that there is a meanginful category of 'pschological CF' at the moment. We always want to be trying to provide the most meaningful diagnosis possible, and trying to avoid lumping together people with different health problems, but that can be difficult to actually achieve. Not of the various criteria for ME or CFS seem likely to be perfect at identifiying one 'true' group with a single cause of ill-health.
Right, so surely in reality there aren't people who have recovered via mould avoidance being given a diagnosis of ME, and your question about "what is gained" by giving them an ME diagnosis doesn't reflect how people actually get diagnosed with ME.
In reality, I'm not sure that we have a good way of identifying people like this, and once they have been successfully treated by mould avoidance (assuming anyone is), in what situation would they then be given a diagnosis of ME? It's very difficult to assess 'what is gained' in an almost unimaginable situation.
Because they fulfil the criteria for ME.
We don't know what ME is, and cannot be certain that mould intollerance is not a cause of ill health for some (or even all) of those with ME. A lot of the mould stuff sounds like BS to me, but I think it's best to criticise the specific problems with it rather than jumping to the assertion that we know someone with MI did not have ME.
But if someone has been diagnosed as having ME but then discovers they have a mould intolerance, why would they want to persist with the ME diagnosis? Why not just accept they had MI? What's to be gained with persisting with the ME diagnosis?
But they don't fulfil the criteria for ME because their symptoms were the result of MI. Just as someone who, it turns out, has Lyme or a thyroid problem or MS, never had ME, despite wrongly (in some cases) having been diagnosed as having it.
MI precludes a diagnosis of ME, just as MS or Lyme do, because ME symptoms have to be unexplained by other causes.
Why go to all these lengths to include people who have mould intolerance? I'm baffled.