Replenished
Senior Member
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- 248
Not another thread from me complaining about my ongoing thirst, frequent urination and dehydration....but at this point I am certain my general symptoms are caused by low blood volume or some for of autonomic dysfunction that causes fluid loss and low blood volume. Call my condition M.E./CFS or POTS I don't know, I have the symptoms of both but they are all underpinned by this hypovolemia issue it seems. What came first the chicken or the egg; the low blood volume causing the M.E./POTS or M.E./POTS causing low blood volume and dehydration. Either way, if I ever have a brief period where I retain fluids a bit better and feel my blood volume is greater, my symptoms are massively reduced. Hence making this thread a place to list ideas on this subject and more specifically treatments, be that drugs, supplements or whatever else to increase fluid retention and blood volume.
I will list the things I am trying and experimenting with over the coming months until I find a viable solution/healing.
Currently I am experimenting with fludrocortisone. To me it feels as though it gives me around a 10 - 15% improvement in retaining fluids and urinating a bit less. I feel a little better but given the long term effects of this drug i'm unsure if such a small improvement is worth it and i'm searching for a better solution.
I am hoping to try Saline IV soon. I am seeing Dr Weir in December who I hope also might have some options/ideas around this as i've heard of him recommending saline IV and talking about the issues of frequent urination/thirst in M.E./CFS.
I have desmopression but for me it does very little. It may reduce the urination a tiny bit for an hour or so then everything it dumped out. Even when I take massive doses of desmopressin and retain fluid for a time. It doesn't feel like I'm hydrated.
NSAIDS in highish doses do seem to help me concentrate urine and retain fluids a little better temporarily for the few hours or so after taking the medication but again this is only a very mild improvement.
Electrolytes do almost nothing for me it seems. Obviously we all need them and they can he helpful for some of us who are permanently dehydrated but they don't really make me feel any better, any more hydrated or retain fluids any better.
I'm sure there are many other things to try and I'll put them here as I try them and happy for others to do the same in regards to things that have helped them retain fluids better, concentrate urine better, feel more hydrated and increase blood volume.
I will list the things I am trying and experimenting with over the coming months until I find a viable solution/healing.
Currently I am experimenting with fludrocortisone. To me it feels as though it gives me around a 10 - 15% improvement in retaining fluids and urinating a bit less. I feel a little better but given the long term effects of this drug i'm unsure if such a small improvement is worth it and i'm searching for a better solution.
I am hoping to try Saline IV soon. I am seeing Dr Weir in December who I hope also might have some options/ideas around this as i've heard of him recommending saline IV and talking about the issues of frequent urination/thirst in M.E./CFS.
I have desmopression but for me it does very little. It may reduce the urination a tiny bit for an hour or so then everything it dumped out. Even when I take massive doses of desmopressin and retain fluid for a time. It doesn't feel like I'm hydrated.
NSAIDS in highish doses do seem to help me concentrate urine and retain fluids a little better temporarily for the few hours or so after taking the medication but again this is only a very mild improvement.
Electrolytes do almost nothing for me it seems. Obviously we all need them and they can he helpful for some of us who are permanently dehydrated but they don't really make me feel any better, any more hydrated or retain fluids any better.
I'm sure there are many other things to try and I'll put them here as I try them and happy for others to do the same in regards to things that have helped them retain fluids better, concentrate urine better, feel more hydrated and increase blood volume.
