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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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postural orthostatic tachycardia syndrome (pots)

  1. W

    terrible dizziness after mental and physical exertion.

    this year after covid or covid shots I rarely develop something like terrible dizziness vomiting and gi issues after mentally or physically exerted. this issue happens monthly or twice monthly or getting worse throughout the year. I also recognised that some supplements like liposamal vitc...
  2. R

    M.E./POTS - Treatments, medications, protocols to increase fluid retention, hydration and blood volume

    Not another thread from me complaining about my ongoing thirst, frequent urination and dehydration....but at this point I am certain my general symptoms are caused by low blood volume or some for of autonomic dysfunction that causes fluid loss and low blood volume. Call my condition M.E./CFS or...
    • Replenished
    • Thread
    • dehydration diabetes insipidus dry mouth excessive urination fluid retention frequent urination low blood volume postural orthostatic tachycardia syndrome (pots) pots thirst
    • Replies: 18
    • Forum: Dysautonomia: Problems Standing, OI, POTS
  3. I

    IVIG UK

    Hi, does anyone know if there is anywhere in the UK that offers IVIG privately? I'm looking to try it out as a POTS treatment which seems to be autoimmune in my case. It seems it is only offered on the NHS for immune deficiency and, whilst I know i'm immune deficient (low white blood cells and...
    • Inez
    • Thread
    • autoantibodies autoimmune cfs hyperpots ivig myalgic encephalomyelitis postural orthostatic tachycardia syndrome (pots) pots
    • Replies: 5
    • Forum: General Treatment
  4. SWAlexander

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with Myalgic Encephalomyelitis/Chronic Fatigue

    Abstract Background and Objectives: Symptoms and hemodynamic findings during orthostatic stress have been reported in both long-haul COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), but little work has directly compared patients from these two groups. To investigate the...
    • SWAlexander
    • Thread
    • cerebral blood flow chronic fatigue syndrome frans visser linda van campen long-haul covid-19 orthostatic intolerance peter rowe postural orthostatic tachycardia syndrome (pots)
    • Replies: 19
    • Forum: Long COVID and Coronavirus