testing...testing...
2 weeks later...I finally finished the test. I scored a 12, maybe a 13...wasn't quite sure about the weight thing. I consider myself very skinny, but was just a few pounds above the weight limit in order to score a "1".
But since I don't have any menstrual problems or pregnancy issues (at least I hope not!), leaving those two sections out kind of skews the results.
I'm going to call the doctor (who was trained by Klinghardt) on Monday. Gotta get this test...(and the methylation if I can raise the $)...it just explains SO many of my symptoms, both pre and post CFS.
Also, in the last few days I've been taking extra copper, as I had tested low for that several times in the past, and had never really taken it very much...but in doing so (I think it was the copper), I've had such bad mood swings and almost suicidal thoughts, (and lots of anxiety/anger)...that it just seems to fit in even more with the pyroluria hypothesis. One doc's website says to avoid copper and fish oil...two things I actually added within the last week or so.......argh.
Thanks again for this thread.
d.
OK: http://www.hputest.nl/evraag.htm <------ the "comprehensive" questionaire.
This may help someone decide whether to get further testing?
The home page (in computer translated English) is http://www.hputest.nl/english.htm
Anne.
(I scored a 13)
13 to 14 points very probable that you have HPU
10 to 12 points you may have HPU
7 to 9 points you may or may not have HPU
less than 6 points not likely that you have HPU
2 weeks later...I finally finished the test. I scored a 12, maybe a 13...wasn't quite sure about the weight thing. I consider myself very skinny, but was just a few pounds above the weight limit in order to score a "1".
But since I don't have any menstrual problems or pregnancy issues (at least I hope not!), leaving those two sections out kind of skews the results.
I'm going to call the doctor (who was trained by Klinghardt) on Monday. Gotta get this test...(and the methylation if I can raise the $)...it just explains SO many of my symptoms, both pre and post CFS.
Also, in the last few days I've been taking extra copper, as I had tested low for that several times in the past, and had never really taken it very much...but in doing so (I think it was the copper), I've had such bad mood swings and almost suicidal thoughts, (and lots of anxiety/anger)...that it just seems to fit in even more with the pyroluria hypothesis. One doc's website says to avoid copper and fish oil...two things I actually added within the last week or so.......argh.
Thanks again for this thread.
d.