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I am trying to rest for 10 minutes every hour or two.. But there are days where I'm just 2 fatigued and I end up in bed resting for hours at a time..is it bad for me to rest too much?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I am trying to rest for 10 minutes every hour or two.. But there are days where I'm just 2 fatigued and I end up in bed resting for hours at a time..is it bad for me to rest too much?
This has been very true for me. I would say at the beginning of the illness is the most important time to maintain your strength (i think isometric exercises are probably the easiest for us) . The reason being is that it takes less energy to maintain our strength than to lose it and have to rebuild the strength again.Yes. Deconditioning will be your worst enemy
As someone with mild CFS (60% normal) after a few years the deconditioning was the same or more physically debilitating than CFS for normal activities of daily livingBut it only plays a small part in our inability to exercise and therein lies the problem
after a few years the deconditioning was the same or more physically
That’s interesting. I wonder how many others this applies to?
It's a no for me. At the level I'm at, it will be a long time before I have to worry about deconditioning, and rest is more important.I am trying to rest for 10 minutes every hour or two.. But there are days where I'm just 2 fatigued and I end up in bed resting for hours at a time..is it bad for me to rest too much?
Nothing's more important than rest for me
Listen to your body and you'll know what's right for you.I am trying to rest for 10 minutes every hour or two.. But there are days where I'm just 2 fatigued and I end up in bed resting for hours at a time..is it bad for me to rest too much?
I couldn agree with this more. the ONLY thing I have ever found that consistently helps me to function is MORE, not less rest.Forced bed rest due to a bad OI flare leaves me stronger afterward, not weaker. Whatever happens to us from ME/CFS is having a completely overwhelming impact when compared to deconditioning. And the actual research regarding deconditioning in healthy people suggests it is rectified very quickly, typically in a matter of weeks.
My general impression is that deconditioning is such a minor factor in ME/CFS that it's not worth worrying about until we're cured. And then we'll simply start doing more because we can, without needing to carefully schedule little increases in activity, or cutting back on other activities, or suffering pain and exhaustion from it.
Deconditioning is the bogeyman the psychobabblers use to scare patients, mislead the public, and maintain control. It's really not something we should be taking seriously until our disease is cured or completely in remission.
So what you are trying to say someone like Stephen Hawking who can barely move at all has a body that is not deconditioned? Err... okDeconditioning is not an issue if you are mode/severely affected - how can it be if you simply CANT exercise AT ALL?
So what you are trying to say someone like Stephen Hawking who can barely move at all has a body that is not deconditioned? Err... ok