SOC
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Systemic EID
Not bad.
Pronounced: Systemic I-E-D, or Sytemic Ide ?
I was thinking Systemic E. I. D. Bit of a mouthful, but not too bad, especially since I get to emphasize the systemic part.
Systemic EID
Not bad.
Pronounced: Systemic I-E-D, or Sytemic Ide ?
Cause its four letters, if one spells it.. people are going to look at you strange and think you are trying to spell the actual name of the illness rather then just the abbrev.
I cant think off my head of any medical disease abbrev in which the abrev letters are spelt out in which are over 3 letters.... they are all 2 or 3 letters.
What is worse, this doesn't begin to express the scope of my symptoms and how they interrelate and progress. It says nothing about susceptibilities.
If you wanted to incorporate all the major symptoms of ME/CFS in the title of this disease
I don't believe that is what I said at all.
...that it sounds like a one-note thing of not much consequence. But that is just my opinion, if I may offer one without being mocked.
What did you mean then when you said: "this doesn't begin to express the scope of my symptoms and how they interrelate and progress". I read this to mean that you are complaining SEID does not cover the full scope of your ME/CFS symptoms.
I did not mock; I asked for an example of a disease name which incorporates all the "notes" of the disease it represents; and I pointed out it would be impossible to incorporate all the myriad aspects of ME/CFS in a simple phrase.
Even myalgic encephalomyelitis, which I still think is a perfectly good name, only incorporates "muscle pain" and "inflammation of the brain and spinal cord".
@Iquitos you made my night!I'd pronounce the initial s as sh and call it sheit.(Giving it all the gravity it deserves...)
@Hip You just described my CFS "wet dream". If only encounters could be so sweet (minus the you've got a chronic illness part).I think the name "Systemic EI" also rolls off the tongue nicely, similar to what @SOC mentioned earlier.
As in:
Doctor: "I am afraid I have very bad news: you have a nasty disease called Systemic EI."
Patient: "Oh my God! That sounds terrible."
Doctor: "I am afraid it's worse than terrible; systemic EI is a disease that will ravage every aspect of your life. It hits both mind and body.
Patient: "Oh sweet Jesus!. What does the 'EI' stand for?"
Doctor: "Exertion Intolerance. It means that every time you try to perform any substantial activity, either physically or mentally, you will get a terrible reaction in both body and mind, which we call post-exertional malaise, or PEM for short. PEM is metaphorically like being hit by a freight train.