I'll add those@wdb Strangely my brain had found another way to pronounce it as "Sed" or "Seyd" which was not one of your choices so I didn't vote. My guess is that no one, including doctors, will have a clue how to pronounce this word.
DIES (backwards)
I have been saying for years that a new name is the wrong goal. Our primary initial focus should be for a diagnostic test. Then we can define a new name.Wasting time and money thinking up innacurate and ludicrous names for a debilitating neurological illness is obviously more important than researching to find a cure.
Maybe that was the goal all along. They throw us a few bones w/ the "serious disease" "real disease" talk and think everyone will be so happy about that and getting rid of CFS. But at this point, the money needs to go to research. At least they did say that. BUT what will this criteria change do to the research and building on what is already out there ? Until there is more I say stick w/ CCC !!!!!i dont understand why they are trying to broaden the definition which will just muddy any good research. They are doing that with fibro now, ingrown toe nail and u can get a diagnosis on fibro??