Help! Develop rashes when eating but all food sensitivities negative. Gut issues?

[Goldfishbowl]

Thank you Wayne. Will certainly look into Sodium Thiosulphate.
Wouldn't it be nice if all our ailments could just be bathed away in a nice warm bath.

 

[BeADocToGoTo1]

Hi maggie3,

The US Biotek panel also provided zero sensitivities with me, and yet I was sensitive to almost everything. Nausea, bloating, weird skin irritation, pain, itchy, etc.

Candida overgrowth was already mentioned as something to check for.

Also, have you checked for small intestinal bacterial overgrowth (SIBO).

And another area often overlooked by doctors is exocrine pancreatic insufficiency (EPI), where your pancreas does not produce enough enzymes to break down food. These malabsorbed particles then play havoc with your intestines and immune system causing many downstream symptoms. Not to mention becoming nutrient deficient. You could try taking some pancreatic enzymes (pancrelipase) with your meals as an experiment until you get things tested. If you need more info you can check the thread in my signature, as I had all three but was able to turn things around.

 

[maggie3]

Hi maggie3,

The US Biotek panel also provided zero sensitivities with me, and yet I was sensitive to almost everything. Nausea, bloating, weird skin irritation, pain, itchy, etc.

Candida was already mentioned as something to check for.

Also, have you checked for small intestinal bacterial overgrowth (SIBO).

And another area often overlooked by doctors is exocrine pancreatic insufficiency (EPI), where your pancreas does not produce enough enzymes to break down food. These malabsorbed particles then play havoc with your intestines and immune system causing many downstream symptoms. Not to mention become nutrient deficient. You could try taking some pancreatic enzymes (pancrelipase) with your meals as an experiment until you get things tested. If you need more info you can check the thread in my signature, as I had all three but was able to turn things around.

So frustrating. Ya just yesterday I was eating some steamed veggies (the type of veggies that are given a thumbs up for following almost any diet/elimination diet) and I started having a reaction where my ears and joints get really hot and red. I wanted to bang my head against a wall because I was so frustrated and confused as to why my body was reacting like that to foods that should really be tolerable. But yeah I have been checked for candida and SIBO, both good. Going to do an intestinal permeability test now. Ill definitely take a look at your pancreas thread for sure!

 

[BeADocToGoTo1]

So frustrating. Ya just yesterday I was eating some steamed veggies (the type of veggies that are given a thumbs up for following almost any diet/elimination diet) and I started having a reaction where my ears and joints get really hot and red. I wanted to bang my head against a wall because I was so frustrated and confused as to why my body was reacting like that to foods that should really be tolerable. But yeah I have been checked for candida and SIBO, both good. Going to do an intestinal permeability test now. Ill definitely take a look at your pancreas thread for sure!

This is the test I did for leaky gut:

Cyrex Laboratories - Intestinal Antigenic Permeability Screen

Did you do a urine metabolite test like Genova FMV or Great Plains OAT as they provide a wealth of info too?

 

[maggie3]

This is the test I did for leaky gut:

Cyrex Laboratories - Intestinal Antigenic Permeability Screen

Did you do a urine metabolite test like Genova FMV or Great Plains OAT as they provide a wealth of info too?

Okay cool. I think the one my doc ordered is through Doctors Data Intestinal Permeability urine test. I'll do a little research/bring it up with my doc on the other one you suggested as I do not believe I have done a test like that.

 

[Aerose91]

These sound like mast cell issues to me. An easy way to rest it is to take around 1000 mg of inositol or quercetin before a meal and see if the reactions are reduced. You can also try an H1 blocker like xyzal but it may make you a bit drowsy

 

[hb8847]

I have been sick for a little over a year now and just a few months ago I started having reactions occasionally when eating. The reaction starts by causing my ears to get really red and hot, then my face, chest, shoulders, elbows, knees (basically all joints) becomes really red and hot. After talking to one of my doctors we thought maybe since I have become sick and my GI track has become tired, I am now reacting to certain foods that I have sensitivities to, that when healthy my body could manage better.

So we decided to do a couple food sensitivity panels. One was and IgG panel with US Biotek and the other was an in house allergen nut panel. I got the results and basically have zero sensitivities to any foods. Even ones like walnuts and pineapple that I ate and immediately had reactions to were undetectable. Even weirder is that sometimes I eat these foods and have no reaction whatsoever. And just the other week, after not eating any food for a while, I was sucking on a zinc lozenge and started having a reaction which just seems weird.

Anyways, since the results came back normal my MD basically told me that she is not really sure what to do, even though I even had photos of the rashes that I get. I have been talking with my naturopathic doctor about gut issues but he is a little stumped as well.

Does anyone have any similar experience to this? Knowledge/understanding/resources that could help me? Could this have something to do with leaky gut or a microbiome imbalance?

It sucks to continue to feel sicker and sicker and every time I do a test it comes back normal, my MD congratulates me and then sends me on my way with even more despair that I am never going to get better.

Hi maggie3

As others have suggested this sounds like it could be a histamine intolerance, or mast cell disorder.

This is different from an allergy so would not show up on IgG or any other allergy related profiles. Rash is a common side effect, and the fact that the response you get is delayed is another factor.

Please have a read up on histamine intolerance and its causes. It's very curable and is likely to be being caused by some sort of gut bacterial dysbiosis and I think finding a specialist in that area would be a good idea.

For now you might want to think about downloading a list of low histamine foods and trying these for a while to see if the symptoms subside. Also OTC antihistamines can help calm down reactions.

Best of luck.

 

[ljimbo423]

Please have a read up on histamine intolerance and its causes. It's very curable and is likely to be being caused by some sort of gut bacterial dysbiosis and I think finding a specialist in that area would be a good idea.

Hi @maggie3 -

I agree with hb8847. The first place I would look for answers would be your gut. I have been treating my gut daily for just over 2 years and have gone from moderate CFS to mild and continue to improve.

Almost all of my symptoms have improved, some dramatically, including really bad non-allergic rhinitis, fatigue and PEM. My non-allergic rhinitis consisted of constant nasal congestion and constant runny nose.

I now have very mild congestion, occasionally and my runny nose has also improved a lot! Which tells me gut dysbiosis is the cause of my non-allergic rhinitis and I also believe my CFS.

I think finding a specialist in treating gut dysbiosis would give you your best shot at improving from your symptoms.