Hi,
Since my girlfriend and me both have cfs, and we both see KDM, I think I can offer some perspective on a few of the questions just asked:
Concerning WBC:
KDM told us that XMRV is a lot like HIV. This means that it is not the xmrv making us sick, but the coinfections, and the way our body's respond to them. In my case the co is Q-fever. He told us that if he where to get Q, he would have flu like symptoms for 2 weeks, and then never experience q-fever again because of lifetime imunisation. Because I'm XMRV+, it has become a chronic condition (well documented with Q antibody tests over the last 5 years). The same goes for lyme, a healthy person will never get CHRONIC lyme, hence the reports that 100% of chronic lyme patients are XMRV+. In my case teh WBC is always between 15 and 22 where the max value for healthy people is 9. So my WBC is constantly elevated, as is my IL8. A good night sleep is 4-5 hours for me, even with 20 drops of clonazepam.
My girlfriend however has Blastocystis hominis as coinfection. Acording to KDM this is also an infection that a healthy body will defeat within a reasonable short time, unless you are XMRV+. Then this fairly common parasite becomes a chronic problem. Her WBC seldom goes over 3, which is way below the min value. Can't tell you anything about her IL8, results are not in yet. My girlfriend is able to sleep 10-12 hrs a day without taking any sleep medication.
I think the coinfections are the reason why the symptoms and complaints are so diffrent for so many people, although the underlying cause, XMRV undermining our imunsystem, is the same for so many of us.
GcMaf:
I was put on 1/2 dose for the last 3 injections by KDM because of to much inflamation. Although I'm a low responder, after 7 full doses, I was unable to walk without pain killers (3gr of ibuprofen/day) because of joint pain in the knees, and I could hardly turn my head in any direction, because of pain in the neck and shoulders. After the 3 1/2 doses, these symptoms have disappeared, although my sleep has seriously deteriorated, and I definatly have less stamina. That is why I asked the nurse Jan, if he could ask KDM if it where possible to go back to a full dose for a while.
I was on azithromycin for 3 years for my Q, which I stopped taking in november 2009, because my antibody's started going back up after slowly decreasing over this 3 year period. When I asked KDM why he was putting me back on azithromycin, instead of doxy in combination with plaquinil (ILAD's guideline for q-fever), after the 3 years of taking it clearly showed that it was no longer working, he assured me that now it would work because of the synergy with GcMaf, and nexavir.
For my intestinal problems (Enterococci overgrowth) he had prescribed me enteric coated amoxicilin in my previous protocol. When I told him however that I was able to covince my GP(summer of 2010) to prescribe me paromomycin, because I was convinced that, like my girlfriend who had tested positive for Blasto in her stool, I had it too, although 14 stool samples said otherwise, and that I experienced a lot more benefit from this paromomycin, then from his amoxi, he said that that was very interesting information, and that he would make a note of that. It was only when I received the new protocol with paromomycin on it, that I started to do some googeling and found out that this compound has some antiviral properties, and since the gut is a known reservoir for XMRV...
http://www.jbc.org/content/278/4/2723.full
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2694137/
KDM also told us that some big news about XMRV was to be released soon, but he could not tell us more because of a confidentiality agreement that he had signed.
He also told us that he had bought some blood from the bloodbank at Leuven, the centre of the opposition for XMRV, and longterm defenders of CBT an GET, and that the results looked promisisng, and he would be able to shut them up real soon. Ofcourse he refused to elaborate on that as wel.
