@Carl - I couldn't find any posts by you in 2014 - here's the earliest one I found:
https://forums.phoenixrising.me/thr...gue-syndrome-testing.43337/page-4#post-705727
It would be much easier for members if you would either link to the appropriate posts or spell out what you are referring to above - it all takes precious energy to try to find what you are talking about.
I was slowly putting together a reply but it was taking some time. Then earlier my PC screen went off and I couldn't get it back on and had to reset. I am not sure what caused that but I lost the post in the process. I have managed to recover it using Form History Control extension.
Searching this whole forum for posts with my username and combinations of the following terms
Quorum, Biofilm, Bacteria, Efflux
Keep it to threads since 2014 but probably more like 2015+. Lyme which is still untreated, left me practically bedridden for several years.
Here is one:
https://forums.phoenixrising.me/threads/i-was-a-sceptical-doctor-until-it-happened-to-me.57985/post-959474
A little here:
https://forums.phoenixrising.me/threads/liquid-nutrition.60903/post-991075
More here:
https://forums.phoenixrising.me/threads/best-biofilm-busters.57222/post-949299
A fairly short thread which contains lots of information:
https://forums.phoenixrising.me/threads/high-ammonia-levels.60188/post-980923
I saw a research announcement which was to be funded by a Charity which was around 2013 and I followed the research and my investigation led me to what causes M.E. and Fibro plus a whole heap of other illnesses. That includes the true cause of COVID-19 risk. Researchers have wasted time and money looking at genes and found nothing remarkable. The cause is very similar to M.E. but pathogens attack a different location which doesn't destroy tissue in the Hypothalamus and Pituitary glands.
I was bitten by a damn tick in early 2015 and could barely get out of bed because of the exhaustion. I still have not managed to get a reliable Lyme disease test. One test done with no positive result but NHS testing sucks so it's not saying much. Another blood drawn but the nurse messed up and the test wasn't done.
My Blood Pressure is very significantly higher than it was before the tick bite. I suspect a Bartonella infection which is a Lyme co-infection. They cause calcification of the circulatory system which is perfect with my family history of heart disease, my father died at my age and his father my grand father died only slightly older. Neither were T1 diabetic and neither had M.E. My BP is very significantly higher 40+% than it was prior to that tick bite. In the UK Lyme disease is not taken seriously, testing is very poor and treatments are not frequently provided. I have seen people from the UK on forums asking for places that they can purchase antibiotics to self treat because their doctors won't treat them. I have had this myself, total dismissal and when a person can get a test, they are practically useless.
Regarding the mistake in the paper, it doesn't show in the final paper and the original paper has been withdrawn. It made a mistake in the definition of the words making up PEM. I forgot what he used TBH but they were later corrected in the final paper. This mistake was also mentioned by other people on other forums.
Anyone who legitimately has ME/Fibro has tissue destruction in the Hypothalamus AND pituitary gland caused by a biofilm protected pathogenic attack against the vagus nerve. That is why antibiotics will not fix it, they only use up available antibiotics because the infection is not treated correctly. That is what I have been trying to find a solution to. That is a very complex problem because of all the potential pathogens which can attack the vagus nerve and cause the tissue destruction. There is a thread on (Partially) Empty Sella on this forum
***Here*** There are some common ones such as Klebsiella pneumoniae, MRSA and also Candida and many others. These will all resist antimicrobials if their biofilms are left intact. I am planning on using a wide range of herbs, many used to treat Lyme which I have not yet used because I do not want to give the pathogens a chance to adapt to them. I have experienced how quickly they adapt when I took Turkey Tail mushroom which had the strongest effect against the pathogen which causes my ME. The 2nd dose gave no reaction because they had adapted to it.
I mitigate the damage to my pituitary which is very significant in me because of the size of the biofilm, using a Chinese herb called Tu Si Zi (Cuscuta Chinensis/Dodder seed). That has been shown to increase the weight and function of the Pituitary gland and it is often used to treat fertility problems in TCM. I have used this since 1992 and I also use Gou Qi Zi/Goji berries along with it. That can affect the immune system so might not be suitable for some sufferers. Tu Si Zi treats the HPA axis fairly well. It also tends to help normalize cortisol levels. The herb has many positive effects for human health, including anti cancer. It's fairly high in Tannins which can affect the bowel and it does tend to bind to the teeth so needs to be kept away from the teeth.
Therefore everything relating to Lyme is on hold until I can make an attempt at destroying the pathogens which cause my M.E. However first of all I want to try and heal my nervous system in my kidneys which have taken a beating over the years and that influences my mood. This happens to everyone who has high levels of emotional or physical stress, it's part of the natural adaption process.
The idea is that I use the extremely high Digestive Permeability with all the holes in my digestive system to absorb Aloe Vera gel from living Aloe plants. I had very good success around 1996/7 with one Aloe Vera juice from GNC, an own brand which was taken off the market after a short time. That was like no other Aloe juice because I have tried them all including expensive capsules. The energy was so incredibly cold and it made extreme levels of anger because of the coldness affecting the liver. I suspect that it might of had some Aloins in it which is almost totally removed from most Aloe juices. Aloins are meant to have a laxative effect but I did not notice that effect when I used it therefore I cannot say for certain whether that was the difference why it worked so well. Maybe they used some different species not usually used. I took 3 tblsp of that with some Turmeric which is all I had at the time before I had internet access and it made me feel so angry. It healed a section of my nervous system in my left kidney. This is significant to both the mood and background cortisol levels. It also normalizes the immune system regulation in that area of the kidney which helps protect it from autoimmune processes and pathogenic attack.
Unfortunately since I made that post the paper has been corrected and therefore my comment in that thread no longer applies. Therefore you are quoting something which is no longer valid. I have been unable to get a copy of the older paper from archive.org because it never completes.
HR Theory
HR Challenge
I have been waiting for a moderator to challenge him on the hide-and-seek game for a while. I think playing such games on a forum such as this is unfortunate, particularly when a claim to know the
cause of the suffering this forum exists to address, is made.
Thank you
@Mary for sending the challenge back to him in a very succinct and professional way. Your words were much better than mine would have been.
@LamzyDivey, I am so sorry your thread, which should be a celebration, has been diverted into this noise. Congrats on your success! I wish you all the more!
No one in those threads have any problems with my posts. The only issue is about the challenge that I set which any CFS sufferer should of spotted very easily. However the paper has now been corrected and the older paper is no longer available therefore my post no longer applies in August 2024. It was mentioned by a number of other people on other forums. It was about the words which the acronym PEM was meant to represent which he got wrong in the original draft. There was nothing wrong with those posts when I made them. If anyone read the paper they would almost certain to spot the error. It does still seem to be in the
final paper in the Abstract section at the top which doesn't seem to of been corrected. Most M.E. sufferers should of spotted that fairly easily.
Abstract
The field of ME/CFS research is challenged by many often confusing and conflicting reports
of immune, neuroendocrine, autonomic, neurological dysfunction. During the prodromal
phase of this condition patients often report flu-like symptoms, persistent chronic fatigue
and gastro-intestinal symptoms including abdominal pain and discomfort.
Its study is complicated by the lack of specific biomarkers and criteria to accurately define
the illness, relying on the exclusion of other fatiguing illnesses. Recent publications suggest
an altered intestinal microbiota and increased intestinal permeability are associated with
ME/CFS. Further evidence is accumulating for dysfunctional energy, lipid and amino acid
metabolism that may indicate oxidative stress and/or immune-mediated damage to
mitochondria, disrupting the efficiency of aerobic respiration, explaining the effect of ***post external
malaise (PEM)***, a unique characteristic for the diagnosis of ME.
Searching this whole forum for posts with my username and combinations of the following terms
Quorum, Biofilm, Bacteria, Efflux
Keep it to threads since 2014 but probably more like 2015+. Lyme which is still untreated, left me practically bedridden for several years.
Here is one:
https://forums.phoenixrising.me/threads/i-was-a-sceptical-doctor-until-it-happened-to-me.57985/post-959474
A little here:
https://forums.phoenixrising.me/threads/liquid-nutrition.60903/post-991075
More here:
https://forums.phoenixrising.me/threads/best-biofilm-busters.57222/post-949299
A fairly short thread which contains lots of information:
https://forums.phoenixrising.me/threads/high-ammonia-levels.60188/post-980923
I saw a research announcement which was to be funded by a Charity which was around 2013 and I followed the research and my investigation led me to what causes M.E. and Fibro plus a whole heap of other illnesses. I worked it out before that research paper was published. That includes the true cause of COVID-19 risk which is what links all COVID-19 risk groups. Researchers have wasted time and money looking for genetic risks for COVID-19 and found nothing remarkable. The cause is very similar to M.E. but pathogens attack a different location which doesn't destroy tissue in the Hypothalamus and Pituitary glands. The destruction of tissue in the Hypothalamus has been hidden, there is evidence of a problem with the pituitary and the hypothalamus and pituitary are extremely closely connected, if one has tissue destruction then the other is also likely to have similar tissue destruction. That partly explains many of the problems experienced in ME/Fibro.
I have an idea for a solution and how to implement it. I will give it more thought before I reveal what I have in mind. It involves personal support between members. However due to the wide range of potential pathogens, not just bacteria, it is very difficult finding a solution for all potential pathogens. Lyme disease herbs might provide a solution providing they are used correctly and the biofilm(s) are removed. Failure to do that and they simply adapt like they did with me and Turkey Tail mushroom.
I have to call it quits there for now. I have a lot to accomplish just remaining among the living because I am getting no where with Doctors. Bartonella are going to kill me if I don't do something and they are costing me a fortune just trying to resist their calcification. I am only guessing what I am dealing with based upon the effects because I cannot get a reliable test on the NHS. Severe IBS with the immune system disruption all caused by Lyme disease. Everything was okay before that damn tick bite despite my severe digestive permeability. Now my immune system is so F'ckd up by Lyme and all the ways that previously worked no longer work.
