• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. SpinachHands

    Diagnosed with long COVID instead of ME- will this harm chances of treatment?

    My partner's appointment with the local NHS ME/CFS "specialist" clinic finally came around. (None of the doctors are actually ME specialists, just a team of physios, occupational therapists and dieticians.) I did the appointment on their behalf (with their consent) as they are too unwell. My...
  2. nerd

    Review: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Neurological Entity?

    Authors: Iñigo Murga Gandasegui, Larraitz Aranburu Laka, Pascual-Ángel Gargiulo, Juan-Carlos Gómez-Esteban, José-Vicente Lafuente Sánchez Published: 27 September 2021 doi: 10.3390/medicina57101030 Abstract
  3. RyeRyeBread

    Advice for the *First* Doctor Visit?

    I'm seeing a new doctor, and I'm really hoping he's open to working through differentials and eventually diagnosis. However, I'm terribly scared that he will be everything we don't want in a doctor: unwilling, unbelieving, rude, "GET and CBT", etc. I have been keeping track of symptoms...
  4. M

    MECFS Diagnosis Medical Questionnaire

    Mecfs352 is a ‘thinktank’ of tertiary students in Australia (see also @MECFS352 on Twitter) that is building a portfolio of evidence-based information on ME/CFS. We identified ME/CFS as a serious medical problem in which most patients remain undiagnosed. We are seeking feedback on a medical...