I always figured that it was part of the problems with my autonomic system.
I agree that it must relate to the ANS somehow since mine is so screwed up but feel like there is a neuromuscular component for me, too.
was when my own hair startled me. I saw a lock of hair fall down, or sway back and forth, out of the corner of my eye. And just for a split second I thought, "what's that moving over there? there's no one home!" I felt very stupid.
This made me laugh b/c I can relate to it. I have not been startled by my own hair yet but give me time and I am sure that it will happen.
Like @Gingergrrl said, I immediately knew it was nothing, just my hair, about a millisecond after it happened. But I still got the stupid startle response and it took a while for my heart to calm down.
My husband has startled me so many times that he now makes sure to make some small noise (cough, shuffle, something) rather than walking into a room without me noticing (he can be surprisingly quiet!). And he always calls me before he comes home so that I will know when to expect him. So, yes, spouses can be trained.
The cough or shuffling noise is a good idea but I feel bad even asking for another modification around this illness. But calling when he is at the door (so I am prepared for my dog to go crazy due to the excitement of a door opening) has been very helpful and my mom does the same thing. I think it was actually her idea.
The fact that he trained himself is both sweet (that he cares so much, does not want me to be startled and feel those horrible after effects) and sad (because I HATE that this is another example of a change/burden that has been brought by this damn illness).
Agreed and I told him that it was very thoughtful.
I found this discussion on the dinet forum, in case it's helpful at all
Thanks and will read it shortly. ETA: I just read it and can relate to a lot of what they are saying including many of the examples (except that I no longer drive and for whatever reason, do not have these reactions in the car as a passenger).