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Cyclophosphamide in ME/CFS Part A:an Open Label Phase-II Study With Six Intravenous Cyclophosphamide

deleder2k

Senior Member
Messages
1,129
Do you know that they will do? Have you heard anything, Kati? :)

Perhaps they won't publish yet, but present their results there.
 

Kati

Patient in training
Messages
5,497
Do you know that they will do? Have you heard anything, Kati? :)

Perhaps they won't publish yet, but present their results there.
i have no clue as of what they will do. It was pure speculation on my part, but it is not uncommon that unpublished or soon to be published data is shared at conferences.

But I would go straight to Florida if they're willing to do a fly-by cyclo for me :) i would do it.

Edit to add: here is the topic of Dr Fluge's talk at IACFSME:


8:15 am – 9:00 am (last 15 min. are Q and A)
Plenary Session
B-lymphocyte depletion and disease mechanisms in ME/CFS
Oystein Fluge, M.D.
Chief Physician, Department of Oncology,
Haukeland University Hospital, University of Bergen, Norway
 
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Messages
2,087
Some say they will publish around November. For me that sounds early, but that is what I am hearing.
The study has a 12 month follow up which doesn't end until Jan 17. Don't expect anything published before 2nd quarter 2017 I'd say.

But we are due an update on whether part B will go ahead or not.
 

deleder2k

Senior Member
Messages
1,129
The study has a 12 month follow up which doesn't end until Jan 17. Don't expect anything published before 2nd quarter 2017 I'd say.

But we are due an update on whether part B will go ahead or not.

I know, that is why I am having trouble understanding it. But I have been told by multiple sources that they are soon ready to publish... hm. I don't know what will happen, but I hope that the results will be get out either way in November! :)
 

mango

Senior Member
Messages
905
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Kalliope

Senior Member
Messages
367
Location
Norway
Messages
2,087
If you're in Norway and able to access these pages, perhaps it's "just" some kind of (temporary?) issue with the locale (language/region) settings of their web server? Hmm...
I wouldn't be too worried, seems like they are just updating the website.
 

NL93

Senior Member
Messages
155
Location
The Netherlands
I know, that is why I am having trouble understanding it. But I have been told by multiple sources that they are soon ready to publish... hm. I don't know what will happen, but I hope that the results will be get out either way in November! :)

Maybe the results were negative:nervous:. It's a bit strange we still haven't heard anything new about part B
 

Kalliope

Senior Member
Messages
367
Location
Norway
If you're in Norway and able to access these pages, perhaps it's "just" some kind of (temporary?) issue with the locale (language/region) settings of their web server? Hmm...
I guess a large job on a big website like that is bound to involve some mistakes. Hope it will be solved soon.
 

Snow Leopard

Hibernating
Messages
5,902
Location
South Australia
I know, that is why I am having trouble understanding it. But I have been told by multiple sources that they are soon ready to publish... hm. I don't know what will happen, but I hope that the results will be get out either way in November! :)

Maybe they're going to publish something else. Or the trial has had adverse effects and they're stopping early...