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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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http://www.cancer.org/treatment/tre...icalsideeffects/chemotherapyeffects/cold-capsCan't one use a chemo cold cap to prevent hair loss? I think they use that at Haukeland.
As far as my knowledge goes, I don't think there should be any hair loss with rituximab- it's only the chemotherapy that affects all cell division that causes hair loss as it breaks at the weak points... so wiping out b-cells shouldn't have any effect. Hoping I'm right!Sorry if this is a very stupid question, but is there any hair loss with using RTX or only with Cyclo?
Only a few days left to IACFSME now. I can't wait. I guess you can't either. Most of this is known, but some new stuff here:
(Yes, my friends call me mr. Google in real life)
Out of patients not given previously rituximab treatment, approximately half the patients describe improvement in fatigue symptoms, cognitive function, pain or sleep disturbances.
Only half of the patients improved and only up to a function level 35%. I was planning to start Cyclo next month but now I am not sure the risk reward ratio is reasonable.