Cyclophosphamide in ME/CFS Part A:an Open Label Phase-II Study With Six Intravenous Cyclophosphamide

deleder2k

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Do you know that they will do? Have you heard anything, Kati? :)

Perhaps they won't publish yet, but present their results there.
 

Kati

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Do you know that they will do? Have you heard anything, Kati? :)

Perhaps they won't publish yet, but present their results there.
i have no clue as of what they will do. It was pure speculation on my part, but it is not uncommon that unpublished or soon to be published data is shared at conferences.

But I would go straight to Florida if they're willing to do a fly-by cyclo for me :) i would do it.

Edit to add: here is the topic of Dr Fluge's talk at IACFSME:


8:15 am – 9:00 am (last 15 min. are Q and A)
Plenary Session
B-lymphocyte depletion and disease mechanisms in ME/CFS
Oystein Fluge, M.D.
Chief Physician, Department of Oncology,
Haukeland University Hospital, University of Bergen, Norway
 
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BurnA

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Some say they will publish around November. For me that sounds early, but that is what I am hearing.
The study has a 12 month follow up which doesn't end until Jan 17. Don't expect anything published before 2nd quarter 2017 I'd say.

But we are due an update on whether part B will go ahead or not.
 

deleder2k

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The study has a 12 month follow up which doesn't end until Jan 17. Don't expect anything published before 2nd quarter 2017 I'd say.

But we are due an update on whether part B will go ahead or not.
I know, that is why I am having trouble understanding it. But I have been told by multiple sources that they are soon ready to publish... hm. I don't know what will happen, but I hope that the results will be get out either way in November! :)
 

mango

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Kalliope

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BurnA

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If you're in Norway and able to access these pages, perhaps it's "just" some kind of (temporary?) issue with the locale (language/region) settings of their web server? Hmm...
I wouldn't be too worried, seems like they are just updating the website.
 

NL93

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I know, that is why I am having trouble understanding it. But I have been told by multiple sources that they are soon ready to publish... hm. I don't know what will happen, but I hope that the results will be get out either way in November! :)
Maybe the results were negative:nervous:. It's a bit strange we still haven't heard anything new about part B
 

Kalliope

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If you're in Norway and able to access these pages, perhaps it's "just" some kind of (temporary?) issue with the locale (language/region) settings of their web server? Hmm...
I guess a large job on a big website like that is bound to involve some mistakes. Hope it will be solved soon.
 
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I know, that is why I am having trouble understanding it. But I have been told by multiple sources that they are soon ready to publish... hm. I don't know what will happen, but I hope that the results will be get out either way in November! :)
Maybe they're going to publish something else. Or the trial has had adverse effects and they're stopping early...