Cyclophosphamide in ME/CFS Part A:an Open Label Phase-II Study With Six Intravenous Cyclophosphamide

deleder2k

deleder2k

Senior Member
Messages
1,129
Do you know that they will do? Have you heard anything, Kati? :)

Perhaps they won't publish yet, but present their results there.
 
Kati

Kati

Patient in training
Messages
5,497
deleder2k said:
Do you know that they will do? Have you heard anything, Kati? :)

Perhaps they won't publish yet, but present their results there.
Click to expand...
i have no clue as of what they will do. It was pure speculation on my part, but it is not uncommon that unpublished or soon to be published data is shared at conferences.

But I would go straight to Florida if they're willing to do a fly-by cyclo for me :) i would do it.

Edit to add: here is the topic of Dr Fluge's talk at IACFSME:


8:15 am – 9:00 am (last 15 min. are Q and A)
Plenary Session
B-lymphocyte depletion and disease mechanisms in ME/CFS
Oystein Fluge, M.D.
Chief Physician, Department of Oncology,
Haukeland University Hospital, University of Bergen, Norway
 
Last edited:
BurnA

BurnA

Senior Member
Messages
2,087
deleder2k said:
Some say they will publish around November. For me that sounds early, but that is what I am hearing.
Click to expand...
The study has a 12 month follow up which doesn't end until Jan 17. Don't expect anything published before 2nd quarter 2017 I'd say.

But we are due an update on whether part B will go ahead or not.
 
deleder2k

deleder2k

Senior Member
Messages
1,129
BurnA said:
The study has a 12 month follow up which doesn't end until Jan 17. Don't expect anything published before 2nd quarter 2017 I'd say.

But we are due an update on whether part B will go ahead or not.
Click to expand...

I know, that is why I am having trouble understanding it. But I have been told by multiple sources that they are soon ready to publish... hm. I don't know what will happen, but I hope that the results will be get out either way in November! :)
 
mango

mango

Senior Member
Messages
905
Last edited:
Kalliope

Kalliope

Senior Member
Messages
367
Location
Norway
BurnA

BurnA

Senior Member
Messages
2,087
mango said:
If you're in Norway and able to access these pages, perhaps it's "just" some kind of (temporary?) issue with the locale (language/region) settings of their web server? Hmm...
Click to expand...
I wouldn't be too worried, seems like they are just updating the website.
 
N

NL93

Senior Member
Messages
155
Location
The Netherlands
deleder2k said:
I know, that is why I am having trouble understanding it. But I have been told by multiple sources that they are soon ready to publish... hm. I don't know what will happen, but I hope that the results will be get out either way in November! :)
Click to expand...

Maybe the results were negative:nervous:. It's a bit strange we still haven't heard anything new about part B
 
Kalliope

Kalliope

Senior Member
Messages
367
Location
Norway
mango said:
If you're in Norway and able to access these pages, perhaps it's "just" some kind of (temporary?) issue with the locale (language/region) settings of their web server? Hmm...
Click to expand...
I guess a large job on a big website like that is bound to involve some mistakes. Hope it will be solved soon.
 
Snow Leopard

Snow Leopard

Hibernating
Messages
5,902
Location
South Australia
deleder2k said:
I know, that is why I am having trouble understanding it. But I have been told by multiple sources that they are soon ready to publish... hm. I don't know what will happen, but I hope that the results will be get out either way in November! :)
Click to expand...

Maybe they're going to publish something else. Or the trial has had adverse effects and they're stopping early...
 
You must log in or register to reply here.
Back