Community symposium on molecular basis of ME/CFS at Stanford Discussion Thread

[Janet Dafoe]

Now: Oystein Fluge! #MECFS18

 

[Murph]

Now: Oystein Fluge! #MECFS18

This is the one where I feel a little dread mixed in with my hope. Where are the papers, what's happening? Have they learned anything? Is there some problem? Are reviewers holding up their publications? etc. I'm desperate for us to get something out of all the work they've put in on rituximab and cyclophosphamide.

 

[Janet Dafoe]

We had a break in which the scientists ran to each other in little groups and excitedly shared info and ideas! Now: Maureen Hanson - extra cellular vesicles et at. #MECFS18

 

[Janet Dafoe]

Raeka read some of your tweets of gratitude to the group before the break. It was very moving for them to connect with you! #mecfs18

 

[Janet Dafoe]

Ami Mac, MD, Jasper Rine, Berkeley geneticist, Craig Heller, Stanford biologist. #MECFS18

 

[Janet Dafoe]

Stuart Kim, Stanford geneticist, Rob Phair, systems modeler, metabolic trap. #MECFS18

 

[Janet Dafoe]

Chris Armstrong now. Love that Aussie accent! Lol #mecfs18

 

[Janet Dafoe]

Last talk of the day is Neil McGregor, another Aussie accent. Omics analysis of symptoms. #mecfs18

 

[Murph]

Last talk of the day is Neil McGregor, another Aussie accent. Omics analysis of symptoms. #mecfs18

Cort has put on Twitter that McGregor has found something on metabolite excretion seven days after exercise that could "could present a major advance and push me/cfs in a new direction!"

Proud Australian here! Any more detail we could get on this without breaching the rules?

 

[Gemini]

I'm desperate for us to get something out of all the work they've put in on rituximab and cyclophosphamide.

@Murph and I'd love to ask Fluge if he has any details about Klimas' Phase II GWS rituximab study. Appears she has an autoantibody signature to identify subgroups... 23:00 on the Discovery 2017 video:

https://forums.phoenixrising.me/index.php?threads/discovery-forum-2017-dr-nancy-klimas.61154/

 

[wigglethemouse]

Cort has put on Twitter that McGregor has found something on metabolite excretion seven days after exercise that could "could present a major advance and push me/cfs in a new direction!"

For completeness Cort also said "McGregor describes "aha' moment - the kind of thing researchers live for."

https://twitter.com/i/web/status/1045094319068069889

Certainly got me interested too. I wonder if Neil McGregor can be squeezed into the Saturday presentation or maybe that is not possible if his work is confidential before publication (i.e. researcher discussion only)

 

[Ben H]

Ben,
Please just remind us at exactly what time to press the Go Live button.
Thanks

Hi @perrier

It's 9am PT, or 5pm UK time.


B

 

[perrier]

Hi @perrier

It's 9am PT, or 5pm UK time.


B

Ok, so that is 12 noon for eastern USA (EST) eastern and central Canada.
And it’s tomorrow—Friday— if I recall. Thank you

 

[Ben H]

Ok, so that is 12 noon for eastern USA (EST) eastern and central Canada.
And it’s tomorrow—Friday— if I recall. Thank you

It's on Saturday, 9am PT.


B

 

[Lisa108]

Time zone converter here.
You can chose PT (Pacific Time) in the first column and your time zone or city in the second column.

It will start at 18:00 in Germany...

 

[Janet Dafoe]

Good morning! Mike Snyder started us off with a super interesting talk about his research using wearable devices that measure all kinds of things and can predict fatigue and the onset of disease. Excited to apply it to MECfs. #MECFS18

 

[Janet Dafoe]

Jonas Bergquist (from Sweden) gave his usual charming talk. Serious part was about studies in autoimmunity, neurotransmitters and steroids. Funded by OMF. That means funded by YOU! So great! #MECFS18

 

[Janet Dafoe]

Jonas Blomberg from Sweden talked about the role of infection in me/CFS pathogenesis and his search for antibodies. #MECFS18

 

[Janet Dafoe]

Mark Davis talked about T-cell clonal expansion and the search for the trigger/s. #mecfs18

 

[Janet Dafoe]

Michael Sikora is a grad student of Lars Steinmetz, colleague of Ron. He talked about his work on clonal expansion of T-cells in me/CFS. He works with Ron and Mark Davis too. This work possible bec of OMF funding and (finally) Ron's new NIH grant. #MECFS18