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Community symposium on molecular basis of ME/CFS at Stanford Discussion Thread

Janet Dafoe

Board Member
Messages
867
After lunch Ron gave a long talk with his ideas on what is important and how to make faster progress. Collaborate. Find experts when you don't know something. Include experts in diverse fields. Make NIH aware that this is scary and anyone can get the life sentence of this disease

Ron: Meet again annually in open sharing. Keep doing discovery and start applying what we are learning to treatments. Focus on why we are doing this, aim for helping patients, not just publications. Always remember patients. #mecfs18
 
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Binkie4

Senior Member
Messages
644
Mohsen Nemat-Gorgani , who has worked with Ron for 15 years and is a membrane expert, introduced his work on red blood cell deformability and he and his team presented updated results. #mecfs18

Am struggling to remember but has a paper been submitted on this? I seem to remember it in a bio posted about Dr Nemat-Gorgani
 
Messages
88
Location
New England, USA

3:35 p.m. Robert Phair, PhD, Integrative Bioinformatics Inc.

Metabolic Traps: A new way to think about ME/CFS (including the first experimental results)


4:00 p.m. Ronald W. Davis, PhD, Stanford University

What’s Next?


4:20 p.m. Panel Discussion: Afternoon Speakers


Closing Remarks:


4:55 p.m. Ronald W. Davis, PhD


5:00 – 6:00 p.m. RECEPTION
 
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Ben H

OMF Volunteer Correspondent
Messages
1,131
Location
U.K.
Love the mutual respect and appreciation between Ron Davis' and Øystein Flute. Ron admiring the approach and curiosity that was shown by the Norwegians in persuing initial findings that so many others would have ignored. #MECFS18
 

AshleyHalcyoneH

Open Medicine Foundation
Messages
66
Location
Bay Area, CA
Some photos so far! Oystein Fluge, Wenzhong Xiao
 

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