Community symposium on molecular basis of ME/CFS at Stanford Discussion Thread

[Janet Dafoe]

Mario Capecchi, Nobel laureate, spoke about the good vs bad use of mouse models and how best to do that. #mecfs18

 

[Janet Dafoe]

Raeka Aiyar talked about stem cell work and some possibilities for MECfs. #mecfs18

 

[Janet Dafoe]

Ron Tompkins of Harvard is now speaking about the impact of trauma and burns on metabolism and possible parallels to MECfs. #MECFS18

 

[Roy S]

https://twitter.com/i/web/status/1045352819111354368

 

[Janet Dafoe]

After lunch Ron gave a long talk with his ideas on what is important and how to make faster progress. Collaborate. Find experts when you don't know something. Include experts in diverse fields. Make NIH aware that this is scary and anyone can get the life sentence of this disease

Ron: Meet again annually in open sharing. Keep doing discovery and start applying what we are learning to treatments. Focus on why we are doing this, aim for helping patients, not just publications. Always remember patients. #mecfs18

 

[Janet Dafoe]

Long discussion of big important issues, like data sharing, calibration of severity levels so studies can be compared, collaborations, et al. #mecfs18

 

[Roy S]

https://twitter.com/i/web/status/1045459336841981952

 

[Binkie4]

Mohsen Nemat-Gorgani , who has worked with Ron for 15 years and is a membrane expert, introduced his work on red blood cell deformability and he and his team presented updated results. #mecfs18

Am struggling to remember but has a paper been submitted on this? I seem to remember it in a bio posted about Dr Nemat-Gorgani

 

[Laurie P]

https://twitter.com/i/web/status/1046052077003255809

3:35 p.m. Robert Phair, PhD, Integrative Bioinformatics Inc.

Metabolic Traps: A new way to think about ME/CFS (including the first experimental results)


4:00 p.m. Ronald W. Davis, PhD, Stanford University

What’s Next?


4:20 p.m. Panel Discussion: Afternoon Speakers


Closing Remarks:


4:55 p.m. Ronald W. Davis, PhD


5:00 – 6:00 p.m. RECEPTION

 

[Ben H]

It's kicked off!




B

 

[Ben H]

Love the mutual respect and appreciation between Ron Davis' and Øystein Flute. Ron admiring the approach and curiosity that was shown by the Norwegians in persuing initial findings that so many others would have ignored. #MECFS18

 

[ljimbo423]

Can we post screenshots from the symposium?

 

[AshleyHalcyoneH]

Can we post screenshots from the symposium?

Yes of course! Please share widely!

 

[AshleyHalcyoneH]

Some photos so far! Oystein Fluge, Wenzhong Xiao

 

[AshleyHalcyoneH]

Jonas Bergquist!

 

[Ben H]

Jonas Berquist's talk mixing a video on traditional Swedish food (last year was the relationship between chocolate and Nobel prizes!) with complex physiology and hormone-immune interaction! (Among many other things) #mecfs18

 

[ljimbo423]

Signs of ongoing neuro-inflammation in both ME/CFS and Fibromyalgia....
Screenshot_2018-09-29 ME CFS Symposium at Stanford 2018 on Livestream(3).png

 

[AshleyHalcyoneH]

Jonas Berquist's talk mixing a video on traditional Swedish food (last year was the relationship between chocolate and Nobel prizes!) with complex physiology and hormone-immune interaction! (Among many other things) #mecfs18

He’s so amazing. Always LOVE his talks! I hope people are tuning in!!

 

[Janet Dafoe]

Listening to Jonas Bergquist. #mecfs18

 

[bertiedog]

Very interesting and encouraging so far. Great speakers. Thank you so much for doing this on our behalf, Ron, Janet and all at OMF.

Pam x