There was a lovely message on another thread:
...and I feel exactly the same way. Yesterday was phenomenal, historic, amazing! I don't have the words to express how grateful I am to the people who organised it. I really just don't have the words and I've got tears of gratitude running down my face as I'm typing this.
I know they'll all be crashed out today (and for several days) but I just wanted to post a
to them all!
I only know to tag @JenB, @JaimeS but I'm sure there are many more!
And thanks so much to all the people who took part, in whatever way.
Ben Howell said:I think yesterday was the first time I felt real hope for this illness since becoming ill. I didn't expect to be so affected by the protests, but I was really touched and am so grateful to everyone who made it, to everyone that will be crashing because of the exertion. I watched the live streams and it gave me a real sense of connection, and community for this illness I haven't felt before (bar on here).
Especially grateful Ron Davis and Janet were involved, and I truly believe he is our absolute best hope. Some of my money each month is going to him now as I truly believe he will crack this bastard disease. The mitochondria have always been heavily implicated, and am so glad, but not suprised, he is looking there.
Anyway wittering on. Huge thanks to everyone involved, I am very grateful.
...and I feel exactly the same way. Yesterday was phenomenal, historic, amazing! I don't have the words to express how grateful I am to the people who organised it. I really just don't have the words and I've got tears of gratitude running down my face as I'm typing this.
I know they'll all be crashed out today (and for several days) but I just wanted to post a
HUGE THANK YOU
to them all!
I only know to tag @JenB, @JaimeS but I'm sure there are many more!
And thanks so much to all the people who took part, in whatever way.
Last edited: