I hope they do it every couple of months....this is how AIDS got more funding right away....
With stats from Leonard Jason:
13% work Full time
Less than 20% part time
25% housebound bedridden
And eveyone in between seems to me like the in betweeners are likley mostly housebound or only able to get out briefly for just the neccesities...thats my guess...with a portion of complete relapse recover relapapse etc.
Regardlesss the stats aren't good....
The protesting needs to be in peoples faces constantly in order to be effective grow to more states and provinces....etc..
We Desperately need a center of Excellence.
@Justin -- if you are referring to Jason's most recent paper, my understanding is that the stats are worse than that: 13.6% can work
at least part time -- meaning that this encompasses both part-time AND full-time workers.
However, let's be scientifically clear; these people were gathered from CFS support centers and ME clinics, so you'd have to be at least seriously concerned about your health to be there in the first place. I know two people diagnosed with "CFS" who continued to work FT; only one ventured to a support group. The other just kept 'pushing through'.
So, to be fair, these stats may come from a group that focuses on mild, moderate and severe, but leaving out the 'very mild' population... which does exist.
-J
