Abilify- Stanford Clinic Patients
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Martin aka paused||M.E.
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Still at 0.5 mg/day?
Martin aka paused||M.E.
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No at 2
hmnr asg
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After going off abilify i reverted back to baseline but a week after my energy normalized to baseline i had a major crash and im doing worse than even my pre-abilify baseline. I dont recall doing anything to cause this crash but who knows.
I will start abilify 0.5mg this weekend. Not sure if its a good idea to start it during a crash but im desperate.
mitoMAN
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So how many of you actually kept benefits from Abilify longer then 3-4 months?
Jessie 107
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I am still getting benefits from abilify I started in late July last year, I take 2mg.
Jessie 107
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Also, Whitney is still getting benefits from this drug or he would not be able to post on Facebook.
Others here wrote directly to @Janet Dafoe and she said recently Whitney is still definitely experiencing benefits from Abilify.
If you see Whitney continuing to periodically write on Facebook or elsewhere then he’s in a better state than he was before where this wasn’t possible.
@leokitten without further information how and why abilify works, its still all speculation at this point. Could also be the longterm benefit from the 4mg Tavor he takes regularly. At some point he got ivig. Its all a big mud of medication right now which they change ever so often without (rightfully so) telling us and real scientific background.
Till the book i didnt even know that Whitney has EDS. Which for me, is a big game changer tbh. Because it in itself can cause extreme fatigue and other conditions. Which could be a whole other entity of Cfs-like disease. There is so much in the dark, which they dont own me and other to tell, but which is strange to find out drop after drop.
So i wont evaluate what is said about whitney. And following this thread here, more ppl seem to decline longterm with the use of abilify because of habituation.
Till the book i didnt even know that Whitney has EDS. Which for me, is a big game changer tbh. Because it in itself can cause extreme fatigue and other conditions. Which could be a whole other entity of Cfs-like disease. There is so much in the dark, which they dont own me and other to tell, but which is strange to find out drop after drop.
So i wont evaluate what is said about whitney. And following this thread here, more ppl seem to decline longterm with the use of abilify because of habituation.
EDS and ME/CFS are not uncommon comorbidities. You can have both diagnosed and it’s not just chronic fatigue found in people with EDS that don’t have ME. Either way, I’m not really sure what connection you could draw between EDS and Abilify.
The logic that your are stating here as reasoning against Abilify is the same logic one should then use against every treatment ever touted for ME. Using that logic, you should never try anything until phase III clinical trials show efficacy because for one reason we have no idea of anyone’s comorbidities or polypharmacy.
So no one should ever have tried rituximab, SS-31, IVIG, or any of the other totally unproven exotic compounds many here are getting shipped from China and taking. For some reason, I’m just not seeing the same level of skepticism regarding totally unproven treatments across the board.
Seeing some positive in vitro ME research or nanoneedle results for a compound is just as next to nothing pitiful evidence as e.g. general research on a compound showing positive effects on neuroinflammation or mitochondria. Its all speculation.
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@leokitten so whats holding you back from trying it then ?
Also i dont understand the need for your whole paragraph. I just mentioned no one knows why Whitney is better at the moment because they dont tell us everything they do to him. And not that no one should take abilify.
Also i dont understand the need for your whole paragraph. I just mentioned no one knows why Whitney is better at the moment because they dont tell us everything they do to him. And not that no one should take abilify.
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Because I’ve been trialing another drug and don’t want to muddle things so I can evaluate the effects of this drug on its own before trialing Abilify.
@leokitten sound reasonable. Good luck with it, hope it works out. We all could need some positive outcomes.
@Martin aka paused||M.E......I hope this finds you in a much better state than you had been. Just wondering and checking how things are going for you? Hoping for the best....Yours, Lenora.