Abilify- Stanford Clinic Patients

hmnr asg

Senior Member
Messages
569
How are you doing @hmnr asg ? Did you restart?
FWIW I’m also doing worse since coming off Abilify.....

After going off abilify i reverted back to baseline but a week after my energy normalized to baseline i had a major crash and im doing worse than even my pre-abilify baseline. I dont recall doing anything to cause this crash but who knows.

I will start abilify 0.5mg this weekend. Not sure if its a good idea to start it during a crash but im desperate.
 

Badpack

Senior Member
Messages
382
I wouldnt take everything from Whitneys Facebook profil at face value. At this point it is more of a OMF advertising page.
 
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Badpack

Senior Member
Messages
382
@leokitten without further information how and why abilify works, its still all speculation at this point. Could also be the longterm benefit from the 4mg Tavor he takes regularly. At some point he got ivig. Its all a big mud of medication right now which they change ever so often without (rightfully so) telling us and real scientific background.

Till the book i didnt even know that Whitney has EDS. Which for me, is a big game changer tbh. Because it in itself can cause extreme fatigue and other conditions. Which could be a whole other entity of Cfs-like disease. There is so much in the dark, which they dont own me and other to tell, but which is strange to find out drop after drop.

So i wont evaluate what is said about whitney. And following this thread here, more ppl seem to decline longterm with the use of abilify because of habituation.
 

leokitten

Senior Member
Messages
1,595
Location
U.S.
@leokitten without further information how and why abilify works, its still all speculation at this point. Could also be the longterm benefit from the 4mg Tavor he takes regularly. At some point he got ivig. Its all a big mud of medication right now which they change ever so often without (rightfully so) telling us and real scientific background.

Till the book i didnt even know that Whitney has EDS. Which for me, is a big game changer tbh. Because it in itself can cause extreme fatigue and other conditions. Which could be a whole other entity of Cfs-like disease. There is so much in the dark, which they dont own me and other to tell, but which is strange to find out drop after drop.

So i wont evaluate what is said about whitney. And following this thread here, more ppl seem to decline longterm with the use of abilify because of habituation.

EDS and ME/CFS are not uncommon comorbidities. You can have both diagnosed and it’s not just chronic fatigue found in people with EDS that don’t have ME. Either way, I’m not really sure what connection you could draw between EDS and Abilify.

The logic that your are stating here as reasoning against Abilify is the same logic one should then use against every treatment ever touted for ME. Using that logic, you should never try anything until phase III clinical trials show efficacy because for one reason we have no idea of anyone’s comorbidities or polypharmacy.

So no one should ever have tried rituximab, SS-31, IVIG, or any of the other totally unproven exotic compounds many here are getting shipped from China and taking. For some reason, I’m just not seeing the same level of skepticism regarding totally unproven treatments across the board.

Seeing some positive in vitro ME research or nanoneedle results for a compound is just as next to nothing pitiful evidence as e.g. general research on a compound showing positive effects on neuroinflammation or mitochondria. Its all speculation.
 
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Badpack

Senior Member
Messages
382
@leokitten so whats holding you back from trying it then ?

Also i dont understand the need for your whole paragraph. I just mentioned no one knows why Whitney is better at the moment because they dont tell us everything they do to him. And not that no one should take abilify.
 
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