post exertional malaise

Moving away from my original thread where I asked about choline supplements as I need urgent help with my partner. For two days they took a choline and inositol supplement (400mg of each in one tablet) and they started getting PEM so they stopped. It's now day seven with daily PEM hitting...

They are 100% bedbound, and have done no activity in two months now. It's been a month since I was able to brush their teeth, and I was last able to change their pyjamas over a month ago. Apart from that they do absolutely nothing- I feed them liquid food through a straw, they use a bedpan and...

Hi, i hope this question is okay to ask, i only feel safe asking it here. When my Condition of ME/CFS was very Mild, something like Sex and Masterbation was something that i could do i believe without PEM, but i could no longer run for example or do heavy lifting as that would cause PEM and many...

There is literally only 1 meditation video on YouTube for PEM,yes one ( ) & it’s less than 18mins long! I’d like to see that change. (as a coping tool,not a cure) I’m requesting that some of my favourite meditation creators address this deficit (& encourage you to do the same if you can spare...

"Rolling" PEM vs Regular PEM What exactly is "Rolling" PEM? How do we tell the difference? Can we have both at the same time? Tips on how to avoid/get out of rolling PEM cycle?

Post-Exertional Symptom Exacerbation (PESE) Post-Exertional Symptom Exacerbation (PESE) is a term that has been proposed to replace the term Post-Exertional Malaise (PEM). Some say that the use of the word "malaise" in PEM minimizes the seriousness of PEM. Some say that "symptom exacerbation"...

I've been waking up [from naps and general overnight sleeping] feeling like I've crashed in my sleep, and been a little caught off guard because I didn't think I was going to- Anyone else? When I crash/have a PEM episode, I usually have a whole handful of symptoms that occur, as somewhat of a...

I classify my PEM in two main ways - crashes (PEM main "episodes") & flares (the hours/days of recovery/worsening of symptoms and baseline after a PEM crash). Looks like this: I'll do an activity/exert myself >> I crash (for me, usually a few hours after the activity, and lasting for 2-6 hrs...

Exercise Intolerance vs. Exertion Intolerance vs. Post-Exertional Malaise A common source of confusion are the terms "exercise intolerance" and "exertion intolerance", and how they relate to PEM. So here's a brief clarification: Exercise Intolerance is a medical term that refers to the...

To put my data-science lessons to work, I'm trying to develop an early-warning system for PEM. I would appreciate others' input: For some of us, there's a delay between overexertion (or whatever the trigger is) and the onset of full PEM. In my case, it's often 36-48 hours before the huge...

Since having severe ME I have done a lot of emotional compartmentalization bc emotions take too much energy to process usually. I dont know if this is emotionally healthy but it seems to be what my body needs This has come into conflict with the buddhist practice I'm trying to do. The...

I don't think this paper has been posted yet, but it's a good review of the studies that look at CardioPulmonary Exercise Tests (CPET) to document PEM/exertion intolerance in ME. Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in ME/CFS (Stevens et al., 2018)...

Because of the pandemic, I've pretty much stayed in bed for the last year. I want to slowly start to recondition, but I don't know where to start, especially because I want to avoid PEM.

We're trying to justify treatment to insurance, but a standard 2-day exercise test doesn't get at my son's primary functional issues. His key items are the fatigue, anxiety, intractable headache, brain fog, bad sleep ... AND the neurocognitive/emotional crash he has after cognitive/emotional...

This paper establishes a questionnaire that can measure Post-Exertional Malaise (PEM). (I don't think this paper from 2018 has been discussed yet.) The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome (Jason...